Bousquet Jean, Schünemann Holger J, Sousa-Pinto Bernardo, Zuberbier Torsten, Togias Alkis, Samolinski Boleslaw, Bedbrook Anna, Czarlewski Wienczyslawa, Hofmann-Apitius Martin, Litynska Justyna, Vieira Rafael José, Anto Josep M, Fonseca Joao A, Brozek Jan, Bognanni Antonio, Brussino Luisa, Canonica G Walter, Cherrez-Ojeda Ivan, Cruz Alvaro A, Vecillas Leticia de Las, Dykewicz Mark, Gemicioglu Bilun, Giovannini Mattia, Haahtela Tari, Jacobs Marc, Jacomelli Cristina, Klimek Ludger, Kvedariene Violeta, Larenas-Linnemann Desiree E, Louis Gilles, Lourenço Olga, Leemann Lucas, Morais-Almeida Mario, Neves Ana Luisa, Nadeau Kari C, Nowak Artur, Palamarchuk Yuliia, Palkonen Susanna, Papadopoulos Nikolaos G, Parmelli Elena, Pereira Ana Margarida, Pfaar Oliver, Regateiro Frederico S, Savouré Marine, Taborda-Barata Luis, Toppila-Salmi Sanna K, Torres Maria J, Valiulis Arunas, Ventura Maria Teresa, Williams Sian, Yepes-Nuñez Juan J, Yorgancioglu Arzu, Zhang Luo, Zuberbier Jaron, Abdul Latiff Amir Hamzah, Abdullah Baharudin, Agache Ioana, Al-Ahmad Mona, Al-Nesf Maryam Ali, Al Shaikh Nada A, Amaral Rita, Ansotegui Ignacio J, Asllani Julijana, Balotro-Torres Maria Cristina, Bergmann Karl-Christian, Bernstein Jonathan A, Bindslev-Jensen Carsten, Blaiss Michael S, Bonaglia Cristina, Bonini Matteo, Bossé Isabelle, Braido Fulvio, Caballero-Fonseca Fernan, Camargos Paulo, Carreiro-Martins Pedro, Casale Thomas, Castillo-Vizuete José-Antonio, Cecchi Lorenzo, Teixeira Maria do Ceu, Chang Yoon-Seok, Loureiro Claudia Chaves, Christoff George, Ciprandi Giorgio, Cirule Ieva, Correia-de-Sousa Jaime, Costa Elisio M, Cvetkovski Biljana, de Vries Govert, Del Giacco Stefano, Devillier Philippe, Dokic Dejan, Douagui Habib, Durham Stephen R, Enecilla Maria Lourdes, Fiocchi Alessandro, Fokkens Wytske J, Fontaine Jean-François, Gawlik Radoslaw, Gereda Jose E, Gil-Mata Sara, Giuliano Antonio F M, Gotua Maia, Gradauskiene Brigita, Guzman Maria Antonieta, Hossny Elham, Hrubiško Martin, Iinuma Tomohisa, Irani Carla, Ispayeva Zhanat, Ivancevich Juan Carlos, Jartti Tuomas, Jeseňák Miloš, Julge Kaja, Jutel Marek, Kaidashev Igor, Bennoor Kazi S, Khaltaev Nicolai, Kirenga Bruce, Kraxner Helga, Kull Inger, Kulus Marek, Kuna Piotr, Kupczyk Maciej, Kurchenko Andriy, La Grutta Stefania, Lane Stephen, Miculinic Neven, Lee Sang Min, Le Thi Tuyet Lan, Lkhagvaa Battur, Louis Renaud, Mahboub Bassam, Makela Mika, Makris Michael, Maurer Marcus, Melén Eric, Milenkovic Branislava, Mohammad Yousser, Moniuszko Marcin, Montefort Stephen, Moreira Andre, Moreno Pablo, Mullol Joaquim, Nadif Rachel, Nakonechna Alla, Navarro-Locsin Cecilia Gretchen, Neffen Hugo E, Nekam Kristof, Niedoszytko Marek, Nunes Elizabete, Nyembue Dieudonné, O'Hehir Robyn, Ollert Markus, Ohta Ken, Okamoto Yoshitaka, Okubo Kimihiro, Olze Heidi, Padukudru Mahesh Anand, Palomares Oscar, Pali-Schöll Isabella, Panzner Petr, Palosuo Kati, Park Hae S, Passalacqua Giovanni, Patella Vincenzo, Pawankar Ruby, Pétré Benoît, Pitsios Constantinos, Plavec Davor, Popov Todor A, Puggioni Francesca, Quirce Santiago, Raciborski Filip, Ramonaité Agné, Recto Marysia, Repka-Ramirez Susana, Roberts Graham, Robles-Velasco Karla, Roche Nicolas, Rodriguez-Gonzalez Monica, Romualdez Joel A, Rottem Menachem, Rouadi Philip W, Salapatas Marianella, Sastre Joaquin, Serpa Faradiba S, Sayah Zineb, Scichilone Nicola, Senna Gianenrico, Sisul Juan Carlos, Solé Dirceu, Soto-Martinez Manuel E, Sova Milan, Sozinova Olga, Stevanovic Katarina, Ulrik Charlotte Suppli, Szylling Anna, Tan Frances M, Tantilipikorn Pongsakorn, Todo-Bom Ana, Tomic-Spiric Vesna, Tsaryk Vladyslav, Tsiligianni Ioanna, Urrutia-Pereira Marilyn, Rostan Marylin Valentin, Sofiev Mikhail, Valovirta Erkka, Van Eerd Michiel, Van Ganse Eric, Vasankari Tuula, Vichyanond Pakit, Viegi Giovanni, Wallace Dana, Wang De Yun, Waserman Susan, Wong Gary, Worm Margitta, Yusuf Osman M, Zaitoun Fares, Zidarn Mihaela
Institute of Allergology, Charité-Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany; ARIA, Montpellier, France.
Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany; Department of Health Research Methods, Evidence, and Impact & Department of Medicine, McMaster University, Hamilton, ON, Canada; Department of Biomedical Science, Humanitas University, Pieve Emanuele, Milan, Italy.
J Allergy Clin Immunol Pract. 2024 Oct;12(10):2648-2668.e2. doi: 10.1016/j.jaip.2024.06.040. Epub 2024 Jul 4.
The traditional healthcare model is focused on diseases (medicine and natural science) and does not acknowledge patients' resources and abilities to be experts in their own lives based on their lived experiences. Improving healthcare safety, quality, and coordination, as well as quality of life, is an important aim in the care of patients with chronic conditions. Person-centered care needs to ensure that people's values and preferences guide clinical decisions. This paper reviews current knowledge to develop (1) digital care pathways for rhinitis and asthma multimorbidity and (2) digitally enabled, person-centered care. It combines all relevant research evidence, including the so-called real-world evidence, with the ultimate goal to develop digitally enabled, patient-centered care. The paper includes (1) Allergic Rhinitis and its Impact on Asthma (ARIA), a 2-decade journey, (2) Grading of Recommendations, Assessment, Development and Evaluation (GRADE), the evidence-based model of guidelines in airway diseases, (3) mHealth impact on airway diseases, (4) From guidelines to digital care pathways, (5) Embedding Planetary Health, (6) Novel classification of rhinitis and asthma, (7) Embedding real-life data with population-based studies, (8) The ARIA-EAACI (European Academy of Allergy and Clinical Immunology) strategy for the management of airway diseases using digital biomarkers, (9) Artificial intelligence, (10) The development of digitally enabled, ARIA person-centered care, and (11) The political agenda. The ultimate goal is to propose ARIA 2024 guidelines centered around the patient to make them more applicable and sustainable.
传统的医疗保健模式侧重于疾病（医学和自然科学），没有认识到患者基于自身生活经历成为自身生活专家的资源和能力。改善医疗保健的安全性、质量、协调性以及生活质量，是慢性病患者护理的一个重要目标。以患者为中心的护理需要确保人们的价值观和偏好指导临床决策。本文回顾当前知识，以开发（1）鼻炎和哮喘共病的数字护理路径，以及（2）数字化支持的、以患者为中心的护理。它将所有相关研究证据，包括所谓的真实世界证据结合起来，最终目标是开发数字化支持的、以患者为中心的护理。本文包括（1）《变应性鼻炎及其对哮喘的影响》（ARIA），20年的历程；（2）推荐分级、评估、制定和评价（GRADE），气道疾病指南的循证模型；（3）移动健康对气道疾病的影响；（4）从指南到数字护理路径；（5）融入行星健康；（6）鼻炎和哮喘的新分类；（7）将现实生活数据与基于人群的研究相结合；（8）ARIA-欧洲变态反应和临床免疫学会（EAACI）使用数字生物标志物管理气道疾病的策略；（9）人工智能；（10）数字化支持的、以ARIA患者为中心的护理的发展；以及（11）政治议程。最终目标是提出以患者为中心的2024年ARIA指南，使其更具适用性和可持续性。
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