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社区-学术伙伴关系促进健康研究:在研究开始前进行迭代和透明的患者参与过程。

Community-Academic Partnerships for Health Research: An Iterative and Transparent Process of Patient Engagement Before the Research Begins.

机构信息

PATIENTS Program, Baltimore, MD.

University of Maryland School of Pharmacy, Baltimore, MD.

出版信息

Ethn Dis. 2024 Jul 2;34(2):53-59. doi: 10.18865/ed.34.2.53. eCollection 2024 Feb.

Abstract

BACKGROUND

The root causes of coronavirus disease 2019 (COVID-19) disparities include longstanding systemic racial bias in economic advancement and care delivery, discrimination, lack of access, and social determinants of health. To address these causes, research institutions and health care systems must shift their lens from one that focuses solely on changing behaviors among underserved and vulnerable populations to one that is inward facing.

METHODS

We worked with a community advisory board and an African American church that has partnered on research for more than a decade to identify community norms, needs, and key resources needed for establishing community-academic partnerships for COVID-19 testing. Participants were purposefully sampled with equal representation from 3 groups: (1) church members and leaders, (2) academic or organization researchers with experience in community-engaged research, and (3) community members with experience participating in community-engaged research. Participants engaged in a hands-on exercise in the church basement as part of a town hall-style meeting.

RESULTS

Active discussion led to the identification of business model components salient to COVID-19 testing in an underserved Baltimore community, predominantly made up of African Americans. Our discussion identified key partners, activities, resources, costs, value propositions, community relationships, community groups, communication channels, and outputs for community buy-in.

CONCLUSION

Developing the business case for mutual trustworthiness to be better prepared for future pandemics and public health crises may foster more sustainable community-academic partnerships. Using a Business Model Canvas, we delineate the major components, activities, and value propositions that are needed to achieve authentic community-academic partnerships to advance health equity.

摘要

背景

导致 2019 年冠状病毒病(COVID-19)差异的根本原因包括在经济进步和医疗保健方面长期存在的系统性种族偏见、歧视、缺乏渠道以及健康的社会决定因素。为了解决这些原因,研究机构和医疗保健系统必须将其视角从仅关注服务不足和弱势群体行为改变的视角转变为关注内部的视角。

方法

我们与一个社区咨询委员会和一个非裔美国教堂合作,该教堂在过去十年中一直与研究合作,以确定建立针对 COVID-19 测试的社区学术伙伴关系所需的社区规范、需求和关键资源。参与者是通过社区咨询委员会和教堂成员推荐,从 3 个群体中进行有目的的抽样,每个群体都有平等的代表性:(1)教堂成员和领袖,(2)具有社区参与研究经验的学术或组织研究人员,以及(3)具有社区参与研究经验的社区成员。参与者在教堂地下室进行了一次实地操作练习,作为一次城镇厅式会议的一部分。

结果

积极的讨论导致确定了在巴尔的摩一个服务不足的社区中进行 COVID-19 测试的商业模式要素,该社区主要由非裔美国人组成。我们的讨论确定了关键合作伙伴、活动、资源、成本、价值主张、社区关系、社区团体、沟通渠道和社区认可的产出。

结论

制定互相信任的商业案例,为未来的大流行病和公共卫生危机做好更好的准备,可能会促进更可持续的社区学术伙伴关系。我们使用业务模型画布,描绘了实现真实社区学术伙伴关系以促进健康公平所需的主要组成部分、活动和价值主张。

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