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“仅针对孕妇,不适合你”:对跨性别及性别多样化癌症幸存者性与生殖健康护理经历的质性评估

"Just for pregnant women, not for you": a qualitative evaluation of the sexual and reproductive healthcare experiences of transgender and gender diverse cancer survivors.

作者信息

Gorman Jessica R, Corey Stephanie L, Ginavan Isabelle, Garcia Jonathan

机构信息

Health Promotion and Health Behavior Program, College of Health, Oregon State University, 2250 SW Jefferson Way, 160 SW 26thStreet, Corvallis, OR, 97331, USA.

出版信息

J Cancer Surviv. 2024 Jul 9. doi: 10.1007/s11764-024-01633-z.

Abstract

PURPOSE

To identify opportunities to improve sexual and reproductive health (SRH) care for transgender and gender diverse (TGD) cancer survivors by describing (1) challenges experienced when navigating SRH care and (2) strategies to help overcome these challenges.

METHODS

We enrolled a purposive sample of 17 adult TGD cancer survivors and 5 co-survivors. We aimed for a diverse sample across cancer experience, age, racial/ethnic background, sexual orientation, and gender identity. We conducted 90-min individual interviews via videoconference and used reflexive thematic analysis, guided by a focus on three social determinants of health.

RESULTS

Themes describing challenges were as follows: (1) Cancer treatment's impact on sexual health was insufficiently addressed by cancer care providers; (2) fertility-related information and conversations were complicated by gendered expectations and ultimately did not meet survivors' needs; (3) feeling excluded and uncared-for in healthcare settings due to gendered language and lack of supportive services that met their needs; and (4) TGD survivors commonly reported high financial burden, negatively impacting their access to care. Strategies to overcome these challenges were (1) a solid social support network that can be integrated into the care team to meet the unique SRH needs of TGD survivors and (2) gender-affirming healthcare providers and environments to address SRH care needs and concerns.

CONCLUSIONS

TGD survivors and co-survivors desire improved access to gender-affirming SRH care in cancer survivorship.

IMPLICATIONS FOR CANCER SURVIVORS

Key opportunities to improve gender-affirming SRH care in cancer survivorship include fostering and engaging TGD survivors' support networks and implementing system-level changes in cancer care settings.

摘要

目的

通过描述(1)在寻求性与生殖健康(SRH)护理时所经历的挑战,以及(2)有助于克服这些挑战的策略,来确定改善跨性别和性别多样化(TGD)癌症幸存者性与生殖健康护理的机会。

方法

我们有目的地招募了17名成年TGD癌症幸存者和5名共同幸存者作为样本。我们旨在获取一个涵盖癌症经历、年龄、种族/族裔背景、性取向和性别认同等方面的多样化样本。我们通过视频会议进行了90分钟的个人访谈,并采用反思性主题分析,以关注健康的三个社会决定因素为指导。

结果

描述挑战的主题如下:(1)癌症护理提供者对癌症治疗对性健康的影响关注不足;(2)与生育相关的信息和对话因性别期望而变得复杂,最终未能满足幸存者的需求;(3)由于性别化语言以及缺乏满足其需求的支持性服务,在医疗环境中感到被排斥和无人关心;(4)TGD幸存者普遍报告经济负担沉重,对他们获得护理产生了负面影响。克服这些挑战的策略是:(1)一个坚实的社会支持网络,可以融入护理团队,以满足TGD幸存者独特的性与生殖健康需求;(2)提供性别肯定的医疗服务提供者和环境,以满足性与生殖健康护理需求并解决相关问题。

结论

TGD幸存者和共同幸存者希望在癌症幸存者护理中能更好地获得性别肯定的性与生殖健康护理。

对癌症幸存者的启示

在癌症幸存者护理中改善性别肯定的性与生殖健康护理的关键机会包括培养和吸引TGD幸存者的支持网络,并在癌症护理环境中实施系统层面的变革。

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