Department of Surgery, Vestfold Hospital Trust, Tønsberg, Norway.
Department of Gyneacology, Vestfold Hospital Trust, Tønsberg, Norway.
PLoS One. 2024 Jul 10;19(7):e0305212. doi: 10.1371/journal.pone.0305212. eCollection 2024.
Increased use of sphincter-preserving surgery following colorectal cancer has led to more people living with low anterior resection syndrome (LARS), a disordered bowel function that significantly impacts quality of life. Little is known about how patients experience the first months following sphincter-preserving surgery and having LARS.
To shed light on what it means to live with LARS in the first three to six months after colorectal cancer sphincter-preserving surgery.
A qualitative study with a phenomenological approach constitutes the study design. Semi-structured interviews were conducted with five participants from September 2022 to January 2023. The transcribed interviews were analysed using Giorgi's phenomenological method.
Five themes emerged from the analysis: bowel emptying becomes all-consuming and affects both daily life and working life, you hear what they're saying, but don't understand what it means until your body goes through it, low anterior resection syndrome may impact sexual life, leaving feelings of guilt, it doesn't matter what the circumstances are, but rather how one deals with them, and support and follow-up from healthcare professionals, employers, family and friends are crucial for living a good life with LARS.
Participants described struggles living with major LARS in the early period following hospital discharge. However, few months later, they had developed strategies enabling them to control their everyday life. Support and follow-up from healthcare professionals, employers, family, and friends were crucial when learning to live with major LARS. Participants expressed desire for a systematic and proactive follow-up from healthcare professionals and contact with peer-support groups.
结直肠癌术后保肛手术的应用日益增多，导致更多人患有低位前切除综合征（LARS），这是一种肠道功能紊乱的疾病，严重影响生活质量。对于保肛手术后前 3 至 6 个月内患有 LARS 的患者的体验，人们知之甚少。
阐明在结直肠癌保肛手术后的前 3 至 6 个月内患有 LARS 的生活意味着什么。
本研究设计采用定性研究和现象学方法。2022 年 9 月至 2023 年 1 月，对 5 名参与者进行了半结构化访谈。使用 Giorgi 的现象学方法对转录后的访谈进行分析。
从分析中得出 5 个主题：排便排空成为日常生活和工作生活的全部，你听到他们在说什么，但直到你的身体经历了它，才明白这意味着什么，低位前切除综合征可能会影响性生活，留下内疚感，重要的不是情况如何，而是如何应对，以及医疗保健专业人员、雇主、家人和朋友的支持和随访对于患有 LARS 的良好生活至关重要。
参与者描述了在出院后早期生活中患有严重 LARS 的挣扎。然而，几个月后，他们已经制定了策略来控制自己的日常生活。医疗保健专业人员、雇主、家人和朋友的支持和随访对于学习与严重 LARS 共存至关重要。参与者表示希望得到医疗保健专业人员的系统和积极的随访，并与同伴支持团体保持联系。
