Ribas Yolanda, Muñoz-Duyos Arantxa, Franquet Marta, Guerreiro Isabel, Perau Jordi, Porras Oscar, Rodríguez Dolores, Rojo Jorge, Ramírez Lucia, Rubio Mercè, Marinello Franco, Jiménez-Toscano Marta, Romero Clara
Consorci Sanitari de Terrassa, Terrassa, Barcelona, Spain.
Hospital Moisès Broggi, Consorci Sanitari Integral, Sant Joan Despí, Barcelona, Spain.
Int J Colorectal Dis. 2024 Dec 5;39(1):196. doi: 10.1007/s00384-024-04775-9.
To address the educational gaps and support needs of patients with low anterior resection syndrome (LARS) following rectal cancer surgery. The LARSCAT project aimed to develop comprehensive resources to better inform patients and enhance their quality of life.
A qualitative study was conducted between November 2022 and March 2023. Seven focus groups were formed, including six patients, two surgeons, and three nurses. Patients had undergone rectal cancer surgery with stoma reversal 2 to 12 years earlier, and all experienced major LARS. The focus groups, held in-person and online, explored the impact on daily life, social and sexual health, mood, rest, and relationships. Thematic analysis was performed to identify key issues and support strategies following the COREQ guidelines.
Participants reported insufficient information regarding potential dysfunctions after rectal cancer surgery, and difficulties finding reliable information online. The timing of receiving information varied according to individual coping mechanisms. LARS symptoms significantly impacted daily life, social activities, sexual health, and mood. Patients emphasised the need for more tailored information and supplementary written materials to read at their own pace. Consequently, three comprehensive documents were created and made available online.
This study highlights a significant gap in patient education on the long-term effects of rectal cancer surgery. The resources developed by the LARSCAT project aim to provide essential support to patients and healthcare professionals. Future research should focus on integrating these resources into routine care and evaluating their impact on patient outcomes and quality of life.
解决直肠癌手术后低位前切除综合征（LARS）患者的教育差距和支持需求。LARSCAT项目旨在开发全面的资源，以便更好地为患者提供信息并提高他们的生活质量。
在2022年11月至2023年3月期间进行了一项定性研究。组建了7个焦点小组，包括6名患者、2名外科医生和3名护士。患者在2至12年前接受了直肠癌手术并进行了造口回纳，均经历了严重的LARS。焦点小组通过面对面和在线方式进行，探讨了对日常生活、社交和性健康、情绪、休息及人际关系的影响。按照COREQ指南进行主题分析，以确定关键问题和支持策略。
参与者报告称，关于直肠癌手术后潜在功能障碍的信息不足，且在网上难以找到可靠信息。获取信息的时间因个人应对机制而异。LARS症状对日常生活、社交活动、性健康和情绪有显著影响。患者强调需要更具针对性的信息以及可供按自己节奏阅读的补充书面材料。因此，创建了三份综合文件并在网上提供。
本研究凸显了直肠癌手术长期影响方面患者教育的重大差距。LARSCAT项目开发的资源旨在为患者和医疗保健专业人员提供必要支持。未来的研究应侧重于将这些资源纳入常规护理，并评估其对患者结局和生活质量的影响。
