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GRAPPA 2023 年会临近之际的 IDEOM 会议报告。

Report of the IDEOM Meeting Adjacent to the GRAPPA 2023 Annual Meeting.

机构信息

G.D. Ball, BS, A.B. Gottlieb, MD, PhD, Department of Dermatology, Icahn School of Medicine at Mount Sinai, New York, New York.

D. Yee, MD, A.W. Armstrong, MD, MPH, Division of Dermatology, David Geffen School of Medicine at the University of California Los Angeles, Los Angeles, California.

出版信息

J Rheumatol. 2024 Oct 1;51(Suppl 2):16-18. doi: 10.3899/jrheum.2024-0327.

Abstract

The nonprofit organization International Dermatology Outcome Measures (IDEOM) is committed to improving the implementation of patient-centered outcome measures in dermatologic disease. At a conference adjacent to the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) 2023 annual meeting, the IDEOM Psoriatic Disease Workgroup presented updates on recent efforts in outcome measure advancement. Dr. Alice Gottlieb presented the preliminary findings of a study within the Mount Sinai Health System that aims to determine how well the IDEOM musculoskeletal (MSK) symptom framework, which uses the Psoriasis Epidemiology Screening Tool (PEST) and the Psoriatic Arthritis Impact of Disease (PsAID) instruments, functions in clinical settings. Drs. Joseph Merola and Lourdes Perez-Chada updated attendees on the IDEOM MSK-Q, a 9-item patient-reported questionnaire designed to measure the intensity and impact of MSK symptoms on the quality of life in patients with psoriasis (PsO) with or without psoriatic arthritis (PsA). Dr. Vibeke Strand summarized the Outcome Measures in Rheumatology (OMERACT) 2023 conference sessions. Dr. April Armstrong discussed the preliminary findings of a multicentered study designed to validate the 7-item Dermatology Treatment Satisfaction Instrument (DermSat-7) among patients with PsO. She also introduced the Psoriasis and Psoriatic Arthritis Treatment Satisfaction Instrument, a tool that seeks to capture the level of patient satisfaction with current therapy for PsO and PsA. This report summarizes the developments discussed at the IDEOM PsO and PsA research workgroups during the GRAPPA 2023 annual meeting.

摘要

非营利组织国际皮肤病结局测量组织(IDEOM)致力于改善皮肤病患者中心结局测量的实施。在与 2023 年 GRAPPA 年会相邻的一次会议上,IDEOM 银屑病工作组介绍了在推进结局测量方面的最新进展。Alice Gottlieb 博士介绍了西奈山健康系统内一项研究的初步结果,该研究旨在确定 IDEOM 肌肉骨骼(MSK)症状框架在临床环境中的表现如何,该框架使用银屑病流行病学筛查工具(PEST)和银屑病关节炎疾病影响(PsAID)工具。Joseph Merola 博士和 Lourdes Perez-Chada 博士向与会者更新了 IDEOM MSK-Q 的情况,这是一种 9 项患者报告问卷,旨在衡量银屑病(PsO)患者有无银屑病关节炎(PsA)的 MSK 症状对生活质量的强度和影响。Vibeke Strand 博士总结了风湿病结局测量(OMERACT)2023 年会议的情况。April Armstrong 博士讨论了一项多中心研究的初步结果,该研究旨在验证 7 项皮肤病治疗满意度工具(DermSat-7)在银屑病患者中的适用性。她还介绍了银屑病和银屑病关节炎治疗满意度工具,这是一种试图捕捉患者对目前治疗银屑病和银屑病关节炎的满意度的工具。本报告总结了在 GRAPPA 2023 年年会期间 IDEOM 银屑病和银屑病关节炎研究工作组讨论的进展情况。

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