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通过阿尔茨海默病患者的眼睛:针对痴呆症患者的家庭照护者的虚拟试点干预。

Through Alzheimer's Eyes: A Virtual Pilot Intervention for Family Caregivers of People with Dementia.

机构信息

Edson College of Nursing and Health Innovation, Arizona State University, Phoenix, Arizona, USA.

出版信息

Clin Gerontol. 2024 Oct-Dec;47(5):846-861. doi: 10.1080/07317115.2024.2378774. Epub 2024 Jul 16.

Abstract

OBJECTIVE

To evaluate the feasibility and acceptability of a virtually delivered psychoeducational skill-building intervention for ADRD caregivers.

METHODS

A single-arm, pre-posttest pilot study design was employed to evaluate the intervention. Four 90-min group-based weekly sessions were combined with four individual coaching sessions via Zoom. Intervention components covered topics designed to reduce caregiver stress and distress, and a VR experience to help caregivers understand dementia. Data was gathered via REDCap pre- and post-intervention and through post-intervention interviews via Zoom.

RESULTS

Results ( = 20) from individual interviews, surveys, and treatment implementation strategies suggest strong feasibility and acceptability. Key change exploration indicated medium effect sizes and statistical significance in preparedness for caregiving ((19) = 2.69,  = .015,  = 63), communication ((19) = 2.45,  = .024,  = 0.55), and a medium effect size for the mindful attention awareness scale ((19) = 0.48, = (0.637,  = 0.54). Further, participants reported their perceptions of improvement in outcomes such as the ability to care, increased understanding of memory loss, and confidence.

CONCLUSIONS

Through Alzheimer's Eyes is a feasible and acceptable intervention that blends technology with skill-building strategies to help caregivers manage their stress and distress regardless of their location.

CLINICAL IMPLICATIONS

There is potential for interventions including VR to assist family caregivers in managing caregiving challenges and improve well-being.

摘要

目的

评估虚拟交付的针对 ADRD 照护者的心理教育技能培养干预措施的可行性和可接受性。

方法

采用单臂、前后测试的初步研究设计来评估干预措施。将四个 90 分钟的小组每周一次的课程与通过 Zoom 进行的四个个人辅导课程相结合。干预措施涵盖了旨在减轻照护者压力和痛苦的主题,以及帮助照护者了解痴呆症的 VR 体验。数据通过 REDCap 在干预前后收集,并通过 Zoom 进行干预后的访谈收集。

结果

个人访谈、调查和治疗实施策略的结果( = 20)表明具有很强的可行性和可接受性。关键变化探索表明,在照顾准备方面有中等的效应大小和统计学意义((19) = 2.69,  = .015,  = 63)、沟通((19) = 2.45,  = .024,  = 0.55)和正念意识量表的中等效应大小((19) = 0.48, = (0.637,  = 0.54)。此外,参与者报告了他们对结果的改善的看法,例如照顾能力、对记忆丧失的理解增加以及信心增强。

结论

通过“Alzheimer's Eyes”,是一种可行且可接受的干预措施,它将技术与技能培养策略相结合,无论照护者的位置如何,都可以帮助他们管理压力和痛苦。

临床意义

包括 VR 在内的干预措施有可能帮助家庭照护者应对照护挑战并改善幸福感。

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