Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.
Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada.
J Cosmet Dermatol. 2024 Nov;23(11):3705-3715. doi: 10.1111/jocd.16465. Epub 2024 Jul 16.
Patient-reported outcome measures (PROMs) for hair loss focus mainly on Alopecia Areata. We created a PROM (i.e., HAIR-Q) that is applicable to any hair loss condition. The HAIR-Q measures satisfaction with hair.
PATIENTS/METHODS: Concept elicitation interviews were conducted and analyzed to develop a draft scale. Content validity was established through multiple rounds of patient and expert input. Psychometric properties of the scale were examined in an online sample (i.e., Prolific) using Rasch measurement theory (RMT) analysis. Test-retest reliability and tests of construct validation were examined.
Content validity of a 22-item draft scale was established with input from 11 patients, 12 experts and an online Prolific sample of 59 people who had a variety of hair loss treatments. In the RMT analysis (n = 390), 8 items were dropped. Data for the 14-item scale fit the Rasch model (χ = 89.85, df = 70, p = 0.06). All 14 items had ordered thresholds and good item fit. Reliability was high with person separation index and Cronbach alpha values ≥0.91, and intraclass correlation coefficient of 0.94 based on a sample of 97 participants. Higher (better) scores on the scale were associated with having more hair, looking younger than ones' age, satisfaction with hair overall, being less bothered by hair loss, and for those who had a hair loss treatment in the past year, being more satisfied with their hair now than before treatment (p < 0.001).
The HAIR-Q evidenced reliability and validity and can be used in research and to inform clinical care to measure satisfaction with hair from the patient perspective.
针对脱发的患者报告结局测量（PROMs）主要集中在斑秃上。我们创建了一个适用于任何脱发状况的 PROM（即 HAIR-Q）。HAIR-Q 测量对头发的满意度。
患者/方法：通过概念启发访谈进行分析，以开发出一份草案量表。通过多次患者和专家的输入来确定内容的有效性。使用 Rasch 测量理论（RMT）分析在在线样本（即 Prolific）中检查量表的心理测量特性。检查了重测信度和结构验证测试。
通过 11 名患者、12 名专家和 59 名在线 Prolific 样本的输入，确定了一个 22 项草案量表的内容有效性，这些人接受了各种脱发治疗。在 RMT 分析（n=390）中，有 8 项被删除。14 项量表的数据符合 Rasch 模型（χ=89.85，df=70，p=0.06）。所有 14 项都有有序的阈值和良好的项目拟合。信度高，个体分离指数和 Cronbach α 值均≥0.91，97 名参与者样本的组内相关系数为 0.94。量表上的得分越高（越好），表示头发越多、看起来比实际年龄年轻、对整体头发的满意度越高、对脱发的困扰越少，对于过去一年接受过脱发治疗的人，现在对头发的满意度比治疗前更高（p<0.001）。
HAIR-Q 具有可靠性和有效性，可以用于研究和为临床护理提供信息，从患者的角度测量对头发的满意度。
