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本文引用的文献

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ISPAD Clinical Practice Consensus Guidelines 2018: Psychological care of children and adolescents with type 1 diabetes.《2018年国际儿童青少年糖尿病学会临床实践共识指南:1型糖尿病儿童和青少年的心理护理》
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2
Assessment of Psychopathology, Quality of Life, and Parental Attitudes in Adolescents with Type 1 Diabetes Mellitus.1型糖尿病青少年的精神病理学、生活质量及父母态度评估
Noro Psikiyatr Ars. 2015 Jun;52(2):133-138. doi: 10.5152/npa.2015.7248. Epub 2015 Jun 1.
3
Symptoms of depression and anxiety in youth with type 1 diabetes: A systematic review and meta-analysis.1型糖尿病青少年的抑郁和焦虑症状:一项系统评价与荟萃分析
Psychoneuroendocrinology. 2016 Aug;70:70-84. doi: 10.1016/j.psyneuen.2016.04.019. Epub 2016 Apr 29.
4
Health-Related Quality of Life and Metabolic Control in Children and Adolescents with Type 1 Diabetes Mellitus.1型糖尿病儿童和青少年的健康相关生活质量与代谢控制
J Clin Res Pediatr Endocrinol. 2016 Mar 5;8(1):67-73. doi: 10.4274/jcrpe.2051. Epub 2015 Dec 18.
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Psychological problems in adolescents with diabetes.患有糖尿病的青少年的心理问题。
Adolesc Med State Art Rev. 2010 Apr;21(1):138-51, x-xi.
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Health-related quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): self and parental perceptions.儿童 1 型糖尿病患者的健康相关生活质量(HRQoL):自我和父母的感知。
Pediatr Diabetes. 2011 Feb;12(1):34-40. doi: 10.1111/j.1399-5448.2010.00653.x.
7
Central nervous system function in youth with type 1 diabetes 12 years after disease onset.1型糖尿病发病12年后青年患者的中枢神经系统功能
Diabetes Care. 2009 Mar;32(3):445-50. doi: 10.2337/dc08-1657. Epub 2009 Jan 16.
8
[The psychometric properties of the new Turkish generic health-related quality of life questionnaire for children (Kid-KINDL)].[新型土耳其儿童通用健康相关生活质量问卷(Kid-KINDL)的心理测量学特性]
Turk Psikiyatri Derg. 2008 Winter;19(4):409-17.
9
Health related quality of life in patients with type I diabetes mellitus: generic & disease-specific measurement.1型糖尿病患者的健康相关生活质量:通用及疾病特异性测量
Indian J Med Res. 2007 Mar;125(3):203-16.
10
The role of socioeconomic status, depression, quality of life, and glycemic control in type 1 diabetes mellitus.社会经济地位、抑郁、生活质量及血糖控制在1型糖尿病中的作用。
J Pediatr. 2006 Oct;149(4):526-31. doi: 10.1016/j.jpeds.2006.05.039.

1型糖尿病患儿生活质量及心理社会问题评估

Evaluation of Quality of Life and Psychosocial Problems in Children with Type 1 Diabetes Mellitus.

作者信息

Yuksel Elida, Bulbul Lida, Yilmaz Semra, Hatipoglu Sami, Cakir Esra Deniz Papatya

机构信息

Department of Pediatrics, Acibadem Atakent Hospital, Istanbul, Türkiye.

Department of Pediatric Allergy and Immunology, University of Health Science Türkiye, Bagcilar Training and Research Hospital, Istanbul, Türkiye.

出版信息

Sisli Etfal Hastan Tip Bul. 2024 Jun 28;58(2):146-154. doi: 10.14744/SEMB.2024.21456. eCollection 2024.

DOI:10.14744/SEMB.2024.21456
PMID:39021699
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11249999/
Abstract

OBJECTIVES

To evaluate the frequency of psychosocial problems and the factors affecting the quality of life in children and adolescents aged between 8 and 18 years with type 1 diabetes mellitus (T1DM).

METHODS

In the study, children and adolescents aged between 8 and 18 years who had been followed for at least 6 months for T1DM were evaluated (T1DM group), and compared with healthy children and adolescents who applied to the general pediatric outpatient clinic and did not have any chronic disease (control group). Data on disease follow-up of children and adolescents with T1DM were obtained from medical records. Sociodemographic characteristics of both groups were recorded in the study form. In addition, the Children's Depression Inventory (CDI), Screen for Child Anxiety Related Disorders (SCARED) and Children Quality of Life Questionnaire (KINDL: KINDerLebensqualitätsfragebogen) were applied to both groups. The scale scores of the T1DM group and the control group were compared. Factors affecting the scale scores of the T1DM group were evaluated.

RESULTS

A total of 181 children or adolescents, 81 of whom were in the T1DM group and 100 in the control group, were evaluated for this study. The mean age was 13.1±2.4 years in the T1DM group and 12.4±2.1 years in the control group. The mean CDI, SCARED, and KINDL scores, respectively; it was 15.3±7.2, 23.6±11.9, and 53.5±13.7 in the T1DM group and 7.9±6.8, 14.7±13, 60±11.6 in the control group. There was a statistically significant difference between the two groups in terms of mean CDI, SCARED, and KINDL scores (all p values <0.001). As compliance with the diabetic diet decreased at home, there was a significant increase in the mean CDI score (p=0.005) and a significant decrease in the KINDL score (p=0.002). It was observed that KINDL score decreased significantly as compliance with the diabetic diet decreased outside the home (p=0.001).

CONCLUSION

Quality of life is lower, and levels of depression and anxiety are higher in children with T1DM compared to healthy children. Psychosocial support should be provided from the moment of diagnosis in order to improve the psychosocial problems and quality of life of children with T1DM.

摘要

目的

评估8至18岁1型糖尿病(T1DM)儿童及青少年心理社会问题的发生率以及影响其生活质量的因素。

方法

本研究对随访T1DM至少6个月的8至18岁儿童及青少年(T1DM组)进行评估,并与到普通儿科门诊就诊且无任何慢性病的健康儿童及青少年(对照组)作比较。T1DM儿童及青少年的疾病随访数据来自病历。两组的社会人口学特征记录在研究表格中。此外,两组均应用儿童抑郁量表(CDI)、儿童焦虑相关障碍筛查量表(SCARED)及儿童生活质量问卷(KINDL:儿童生活质量问卷)。比较T1DM组和对照组的量表得分。评估影响T1DM组量表得分的因素。

结果

本研究共评估了181名儿童或青少年,其中T1DM组81名,对照组100名。T1DM组的平均年龄为13.1±2.4岁,对照组为12.4±2.1岁。T1DM组的CDI、SCARED和KINDL平均得分分别为15.3±7.2、23.6±11.9和53.5±13.7,对照组分别为7.9±6.8、14.7±13、60±11.6。两组在CDI、SCARED和KINDL平均得分方面存在统计学显著差异(所有p值<0.001)。在家中糖尿病饮食依从性降低时,CDI平均得分显著升高(p = 0.005),KINDL得分显著降低(p = 0.002)。观察到在家庭以外糖尿病饮食依从性降低时,KINDL得分也显著降低(p = 0.001)。

结论

与健康儿童相比,T1DM儿童生活质量较低,抑郁和焦虑水平较高。为改善T1DM儿童的心理社会问题及生活质量,应在诊断时即提供心理社会支持。