Bentan Mihai A, Moffatt David, Dawood Emaan, Nord Ryan
Department of Otolaryngology - Head & Neck Surgery, Virginia Commonwealth University School of Medicine, PO Box 980146, Richmond, VA 23298-0146, United States of America.
Department of Otolaryngology - Head & Neck Surgery, Virginia Commonwealth University School of Medicine, PO Box 980146, Richmond, VA 23298-0146, United States of America.
Am J Otolaryngol. 2024 Sep-Oct;45(5):104419. doi: 10.1016/j.amjoto.2024.104419. Epub 2024 Jul 21.
Hypoglossal nerve stimulation (HNS) can be an effective treatment for moderate to severe obstructive sleep apnea (OSA) in positive airway pressure (PAP) intolerant patients. To better understand patient perceptions of HNS therapy, we explored three Facebook groups pertaining to HNS therapy.
A retrospective analysis of Facebook posts from three HNS-related Facebook groups, from October 1, 2022 to October 1, 2023, was performed. Posts were analyzed for author attitude, content (adverse events, inquiries, or sharing information), and the inclusion of media within the post.
From 737 Facebook posts, 752 events were identified, predominantly authored by patients or family (99.5 %). Few posts included media attachments (7.3 %), primarily photos (85.5 %). Post tone was mainly neutral (79.4 %), rather than positive (12.9 %) or negative (7.7 %). Most posts (53.6 %) were queries to the Facebook group, as opposed to sharing information (28.9 %) or detailing adverse events (17.6 %). Notably queries posed by Facebook group members included those pertaining to the postoperative recovery course (10.17 %), physical activity restrictions (6.20 %), HNS therapy eligibility (4.71 %), financial considerations (4.22 %), and more.
Overall, Facebook group members reported a predominantly neutral tone, typically posting queries to the group rather than sharing information or detailing adverse events. These findings illustrate how diverse data sources, such as social media, can enhance our understanding of patient experiences and identify gaps in patient education with HNS therapy.
对于不耐受气道正压通气（PAP）的中重度阻塞性睡眠呼吸暂停（OSA）患者，舌下神经刺激（HNS）可能是一种有效的治疗方法。为了更好地了解患者对HNS治疗的看法，我们探索了三个与HNS治疗相关的脸书群组。
对2022年10月1日至2023年10月1日期间来自三个与HNS相关的脸书群组的帖子进行回顾性分析。分析帖子的作者态度、内容（不良事件、询问或分享信息）以及帖子中是否包含媒体内容。
从737篇脸书帖子中识别出752个事件，主要由患者或其家属撰写（99.5%）。很少有帖子包含媒体附件（7.3%），主要是照片（85.5%）。帖子的语气主要是中性的（79.4%），而非积极的（12.9%）或消极的（7.7%）。大多数帖子（53.6%）是向脸书群组提出的询问，而非分享信息（28.9%）或详细描述不良事件（17.6%）。值得注意的是，脸书群组成员提出的询问包括与术后恢复过程相关的问题（10.17%）、身体活动限制（6.20%）、HNS治疗的适用性（4.71%）、财务考虑（4.22%）等等。
总体而言，脸书群组成员的语气主要是中性的，通常是向群组提出询问，而非分享信息或详细描述不良事件。这些发现说明了社交媒体等多样化的数据来源如何能够增进我们对患者体验的理解，并识别HNS治疗患者教育中的差距。
