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炎症性肠病患者的生活蓬勃发展:疾病认知与健康相关生活质量的作用

Flourishing in life in patients with Inflammatory Bowel Disease: The role of illness identity and health-related quality of life.

作者信息

Krömeke Antonia, Shani Maor

机构信息

Osnabrück University, Germany.

出版信息

J Health Psychol. 2025 Apr;30(5):1089-1103. doi: 10.1177/13591053241260288. Epub 2024 Jul 25.

DOI:10.1177/13591053241260288
PMID:39054613
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11977818/
Abstract

Amidst chronic challenges in Inflammatory Bowel Disease (IBD), including physical symptoms, emotional stress, and social constraints, this study aimed to elucidate how patients' perceptions of their illness and its integration into their self-concept are related to their ability to flourish in life. We hypothesized that having a positive and integrative illness identity and social identification will predict higher flourishing, mediated by enhanced health-related quality of life (HRQoL). In an online survey with 244 German-speaking IBD adults ( = 36.62, 85% women), we found that lower engulfment (where the disease dominates one's identity) predicted higher levels of flourishing, mediated by higher HRQoL. Enrichment, reflecting personal growth from illness, directly predicted higher flourishing, while stronger social identification predicted higher subjective well-being, but not flourishing. The results highlight the potential of fostering positive illness identities and social connections to enhance flourishing in individuals with IBD or similar chronic conditions.

摘要

在炎症性肠病(IBD)面临的长期挑战中,包括身体症状、情绪压力和社会限制,本研究旨在阐明患者对自身疾病的认知以及疾病如何融入自我概念与他们在生活中蓬勃发展的能力之间的关系。我们假设拥有积极且整合的疾病身份认同和社会认同将通过提高健康相关生活质量(HRQoL)来预测更高水平的蓬勃发展。在一项针对244名讲德语的IBD成年患者(平均年龄=36.62岁,85%为女性)的在线调查中,我们发现较低的沉浸感(即疾病主导个人身份)通过较高的HRQoL介导,预测了更高水平的蓬勃发展。反映疾病带来个人成长 的充实感直接预测了更高水平的蓬勃发展,而更强的社会认同预测了更高的主观幸福感,但与蓬勃发展无关。研究结果凸显了培养积极的疾病身份认同和社会联系以增强IBD或类似慢性病患者蓬勃发展的潜力。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6bb2/11977818/dbcfbea990bd/10.1177_13591053241260288-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6bb2/11977818/3548d9c978bb/10.1177_13591053241260288-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6bb2/11977818/dbcfbea990bd/10.1177_13591053241260288-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6bb2/11977818/3548d9c978bb/10.1177_13591053241260288-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6bb2/11977818/dbcfbea990bd/10.1177_13591053241260288-fig2.jpg

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本文引用的文献

1
Social identity and health-related behavior: A systematic review and meta-analysis.社会认同与健康相关行为:系统评价与荟萃分析。
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A Systematic Review of Relationships Between Illness Identity and Health-Related Outcomes in Individuals with Chronic Illnesses.慢性病患者疾病认知与健康相关结局之间关系的系统评价
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Illness Identity in Inflammatory Bowel Disease.炎症性肠病中的疾病认知
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The relationship between illness identity and the self-management of Inflammatory Bowel Disease.疾病认同与炎症性肠病自我管理之间的关系。
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A psychologically rich life: Beyond happiness and meaning.富有心理意义的生活:超越幸福与意义。
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Type D personality is associated with depressive symptoms and clinical activity in inflammatory bowel disease.D 型人格与炎症性肠病中的抑郁症状和临床活动有关。
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J Crohns Colitis. 2021 Jun 22;15(6):1060-1067. doi: 10.1093/ecco-jcc/jjaa247.