Liang Ying, Huang Ruijie, Luo Xiuzhuang, Mo Shuyan, He Zhichuan, Tian Junhong, Yang Lijuan, Xue Yi, Luo Xiaomi
Youjiang Medical University for Nationalities, Baise, China.
The Affiliated Hospital of Youjiang Medical University for Nationalities, Baise, China.
Front Psychol. 2024 Jul 12;15:1384374. doi: 10.3389/fpsyg.2024.1384374. eCollection 2024.
Adolescents with Nephrotic Syndrome (NS) confront unique challenges that influence their Meaning of Life (MOL), a concept crucial for psychological resilience. The chronic nature of NS and its associated burdens necessitate a deeper exploration of MOL and its determinants within this demographic, previously underexamined in research. This study aims to investigate MOL among Chinese adolescents with NS, identifying key factors influencing their sense of meaning and examining the interrelations with Subjective Well-Being (SWB) and Psychological Security (PS).
Employing a cross-sectional survey design, we analyzed 150 adolescents with NS from Baise City, Guangxi, using the Purpose in Life (PIL) scale alongside PS and SWB scales. Sociodemographic and disease-related variables were assessed for their impact on MOL. Data analysis included descriptive statistics, multiple linear regression, and correlation analyses to explore predictors of MOL and its association with SWB and PS.
A significant proportion (62.0%) of participants exhibited MOL scores below the threshold, indicating diminished life meaning. Critical factors impacting MOL included 'left-behind' status, family structure, educational disruptions, and NS duration. Strong correlations emerged between MOL, SWB ( = 0.70, < 0.01), and PS, highlighting the interdependence of these psychological dimensions. The study further revealed 'Proactivity' as a vital component of MOL, suggesting that despite their challenges, adolescents with NS maintain a keen engagement with life. Key aspects such as 'Certainty in Control', 'Mood of Melancholy or Pleasure', and 'Vitality' emerged as crucial for intervention.
The findings underline the profound impact of NS on adolescents' MOL, influenced by both sociodemographic and disease-specific factors. By identifying key areas for psychological intervention, this study contributes to the holistic care and treatment of adolescents with NS, advocating for integrated approaches that address their unique challenges and support systems.
患有肾病综合征（NS）的青少年面临着独特的挑战，这些挑战会影响他们的生活意义（MOL），这是一个对心理适应能力至关重要的概念。NS的慢性性质及其相关负担需要对这一人群的生活意义及其决定因素进行更深入的探索，而此前该领域在研究中未得到充分考察。本研究旨在调查中国患有NS的青少年的生活意义，确定影响他们意义感的关键因素，并考察其与主观幸福感（SWB）和心理安全感（PS）的相互关系。
采用横断面调查设计，我们使用生活目的（PIL）量表以及心理安全感和主观幸福感量表，对来自广西百色市的150名患有NS的青少年进行了分析。评估了社会人口统计学和疾病相关变量对生活意义的影响。数据分析包括描述性统计、多元线性回归和相关性分析，以探索生活意义的预测因素及其与主观幸福感和心理安全感的关联。
相当一部分（62.0%）参与者的生活意义得分低于阈值，表明生活意义降低。影响生活意义的关键因素包括“留守儿童”身份、家庭结构、学业中断和NS病程。生活意义与主观幸福感（r = 0.70，p < 0.01）和心理安全感之间存在强相关性，突出了这些心理维度的相互依存关系。研究进一步揭示“主动性”是生活意义的一个重要组成部分，表明尽管面临挑战，患有NS的青少年仍积极投入生活。“掌控的确定性”“忧郁或愉悦情绪”和“活力”等关键方面对干预至关重要。
研究结果强调了NS对青少年生活意义的深远影响，这受到社会人口统计学和疾病特定因素的影响。通过确定心理干预的关键领域，本研究有助于对患有NS的青少年进行全面护理和治疗，倡导采用综合方法来应对他们独特的挑战并支持他们的系统。
