Safarifard Razieh, Kiernan Gemma, Corcoran Yvonne, Courtney Eileen, Mitchell John, Akard Terrah, Lambert Veronica
School of Nursing, Psychotherapy and Community Health, Faculty of Science and Health, Dublin City University, Dublin, Leinster, D09 V209, Ireland.
Head of Partnerships, Barretstown Children's Charity, Ballymore Eustace, Kildare, W91 RDX6, Ireland.
HRB Open Res. 2024 Jul 17;7:30. doi: 10.12688/hrbopenres.13891.2. eCollection 2024.
In paediatric palliative and bereavement care, providing comprehensive support that extends beyond medical treatment to address the emotional and psychosocial needs of children and their families is essential. Memory-making interventions play a critical role in capturing cherished moments and fostering emotional resilience. However, widespread consensus on the foundation and scope of memory-making interventions for children and young people remains sparse. This review aims to identify, appraise, and synthesise the evidence on memory-making interventions for children and young people with life-limiting or life-threatening conditions and their family members receiving palliative or bereavement care.
This systematic review will follow the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA). A systematic search will be undertaken from January 1, 1985, to February 27, 2024, across the following databases: PubMed, EMBASE, CINAHL (EBSCO), PsycINFO (EBSCO), Web of Science, the Cochrane Library, and Scopus. Studies across diverse research designs that examine children (0-19 years) with life-limiting or life-threatening conditions undergoing memory-making interventions with psychosocial or other outcomes will be included. Screening, data extraction, and quality appraisal will be performed by two independent reviewers, with a third reviewer resolving discrepancies. Joanna Briggs Institute guidelines for conducting mixed methods systematic reviews will be used to inform the data analysis and synthesis process.
This review will provide critical insights into the existing evidence base on memory-making interventions in paediatric palliative and bereavement care, highlighting psychosocial and other impacts, implementation factors, and evidence quality. By identifying best practices and gaps in knowledge, this evidence review may inform future research and intervention design, or adaptation, and contribute to the enhancement of healthcare for children and young people with life-limiting and life-threatening conditions and their families as well as families in bereavement.
This review was registered in PROSPERO, the International Prospective Register of Systematic Reviews (CRD42024521388; 18/03/2024).
在儿科姑息和丧亲照护中，提供全面支持至关重要，这种支持应超越医疗治疗，以满足儿童及其家庭的情感和心理社会需求。记忆留存干预措施在捕捉珍贵时刻和培养情感恢复力方面发挥着关键作用。然而，对于儿童和青少年记忆留存干预措施的基础和范围，目前仍缺乏广泛共识。本综述旨在识别、评估和综合有关针对患有危及生命或有生命危险疾病的儿童和青少年及其接受姑息或丧亲照护的家庭成员的记忆留存干预措施的证据。
本系统综述将遵循系统评价和Meta分析的首选报告项目（PRISMA）。将在1985年1月1日至2024年2月27日期间，对以下数据库进行系统检索：PubMed、EMBASE、CINAHL（EBSCO）、PsycINFO（EBSCO）、科学网、考克兰图书馆和Scopus。将纳入各种研究设计的研究，这些研究考察患有危及生命或有生命危险疾病的儿童（0至19岁）接受记忆留存干预措施后的心理社会或其他结果。筛选、数据提取和质量评估将由两名独立评审员进行，如有分歧将由第三名评审员解决。将使用乔安娜·布里格斯研究所关于进行混合方法系统综述的指南来指导数据分析和综合过程。
本综述将对儿科姑息和丧亲照护中记忆留存干预措施的现有证据基础提供关键见解，突出心理社会和其他影响、实施因素及证据质量。通过识别最佳实践和知识空白，本证据综述可为未来研究和干预设计或调整提供参考，并有助于改善对患有危及生命和有生命危险疾病的儿童及其家庭以及丧亲家庭的医疗照护。
本综述已在国际前瞻性系统评价注册库PROSPERO中注册（CRD42024521388；2024年3月18日）。
