Safarifard Razieh, Kiernan Gemma, Corcoran Yvonne, Courtney Eileen, Mitchell John, Akard Terrah, Lambert Veronica
School of Nursing, Psychotherapy and Community Health, Faculty of Science and Health, Dublin City University, Glasnevin Campus, Dublin, Ireland.
Head of Partnerships, Barretstown Children's Charity, Barretstown Castle, Ballymore Eustace, Co Kildare, Ireland.
Palliat Med. 2025 Sep;39(8):871-883. doi: 10.1177/02692163251353006. Epub 2025 Jul 25.
Emotional and psychosocial support is vital for children with life-limiting or life-threatening conditions and their families. Memory-making interventions, which create lasting memories, are gaining recognition, yet a comprehensive synthesis of their efficacy and scope is lacking.
To systematically review and synthesize evidence on memory-making interventions for children and young people aged 0-19 years with life-threatening or life-limiting conditions and their families in paediatric palliative and bereavement contexts.
A systematic review conducted in accordance with Joanna Briggs Institute guidance for mixed-methods reviews and reported using PRISMA guidelines. Narrative synthesis was used to identify key themes related to the effectiveness, implementation and family experiences of these interventions.
PubMed, EMBASE, CINAHL, PsycINFO, Web of Science, Cochrane Library and Scopus.
Eleven articles met the inclusion criteria, identifying three categories of memory-making interventions: storytelling-based, art-based legacy and physical keepsake creations. While statistical significance was limited, studies suggested small to moderate psychosocial benefits. Narrative synthesis identified four key themes: emotional expression and comfort; family connection and communication; memory preservation and personalization; and grieving support and continued bonds. Digital storytelling was the most common intervention. Families emphasized the need for personalized and culturally sensitive approaches to improve engagement and relevance.
Memory-making interventions provide valuable emotional and psychosocial benefits for children and young people and their families in paediatric palliative and bereavement contexts. Tailored, well-supported interventions can strengthen resilience and well-being. Addressing challenges like technological barriers and cultural sensitivities may optimize these interventions and improve care quality.
情感和心理社会支持对于患有危及生命或限制生命疾病的儿童及其家庭至关重要。创造持久记忆的记忆构建干预措施正逐渐得到认可，但对其功效和范围缺乏全面的综合研究。
系统回顾和综合关于在儿科姑息治疗和哀伤关怀背景下，针对0至19岁患有危及生命或限制生命疾病的儿童及其家庭的记忆构建干预措施的证据。
根据乔安娜·布里格斯研究所的混合方法综述指南进行系统综述，并按照PRISMA指南报告。采用叙述性综合分析来确定与这些干预措施的有效性、实施情况和家庭体验相关的关键主题。
PubMed、EMBASE、CINAHL、PsycINFO、科学引文索引、考克兰图书馆和Scopus。
11篇文章符合纳入标准，确定了三类记忆构建干预措施：基于故事的、基于艺术的遗产和实体纪念品创作。虽然统计学意义有限，但研究表明有小到中等程度的心理社会效益。叙述性综合分析确定了四个关键主题：情感表达与安慰；家庭联系与沟通；记忆保存与个性化；哀伤支持与持续联系。数字故事讲述是最常见的干预措施。家庭强调需要采用个性化和具有文化敏感性的方法来提高参与度和相关性。
在儿科姑息治疗和哀伤关怀背景下，记忆构建干预措施为儿童及其家庭提供了宝贵的情感和心理社会效益。量身定制、得到充分支持的干预措施可以增强复原力和幸福感。应对技术障碍和文化敏感性等挑战可能会优化这些干预措施并提高护理质量。
