Ladune Raphaelle, Hayotte Meggy, Vuillemin Anne, d'Arripe-Longueville Fabienne
Laboratoire Motricité Humaine Expertise Sport Santé, Université Côte d'Azur, Nice, France.
JMIR Form Res. 2024 Jul 30;8:e54322. doi: 10.2196/54322.
Cystic fibrosis (CF) is a genetic disease affecting the respiratory and digestive systems, with recent treatment advances improving life expectancy. However, many people with CF lack adequate physical activity (PA). PA can enhance lung function and quality of life, but barriers exist. The Cystic Fibrosis Decisional Balance of Physical Activity questionnaire assesses the decisional balance for PA in adults with CF, but it is not optimal for clinical use. A digital app might overcome this limitation by improving the efficiency of administration, interpretation of results, and communication between patients and health care professionals.
This paper presents the development process and reports on the acceptability of a web app designed to measure and monitor the decisional balance for PA in people with CF.
This study comprised two stages: (1) the co-design of a digital app and (2) the evaluation of its acceptability among health care professionals and people with CF. A participatory approach engaged stakeholders in the app's creation. The app's acceptability, based on factors outlined in the Unified Theory of Acceptance and Use of Technology 2, is vital for its successful adoption. Participants volunteered, gave informed consent, and were aged >18 years and fluent in French. Data collection was performed through qualitative interviews, video presentations, surveys, and individual semistructured interviews, followed by quantitative and qualitative data analyses.
In total, 11 health care professionals, 6 people with CF, and 5 researchers were involved in the co-design phase. Results of this phase led to the coconstruction of an app named MUCO_BALAD, designed for people with CF aged ≥18 years, health care professionals, and researchers to monitor the decisional balance for PA in people with CF. In the acceptability evaluation phase, the sample included 47 health care professionals, 44 people with CF, and 12 researchers. The analysis revealed that the acceptability measures were positive and that app acceptability did not differ according to user types. Semistructured interviews helped identify positive and negative perceptions of the app and the interface, as well as missing functionalities.
This study assessed the acceptability of an app and demonstrated promising qualitative and quantitative results. The digital tool for measuring the decisional balance in PA for people with CF is encouraging for health care professionals, people with CF, and researchers, according to the valuable insights gained from this study.
囊性纤维化（CF）是一种影响呼吸系统和消化系统的遗传性疾病，近期的治疗进展提高了患者的预期寿命。然而，许多囊性纤维化患者缺乏足够的身体活动（PA）。身体活动可以增强肺功能和生活质量，但存在一些障碍。囊性纤维化身体活动决策平衡问卷评估了成年囊性纤维化患者进行身体活动的决策平衡，但它并不适合临床使用。数字应用程序可能通过提高管理效率、结果解读以及患者与医护人员之间的沟通来克服这一局限性。
本文介绍了一款旨在测量和监测囊性纤维化患者身体活动决策平衡的网络应用程序的开发过程，并报告其可接受性。
本研究包括两个阶段：（1）数字应用程序的协同设计；（2）评估其在医护人员和囊性纤维化患者中的可接受性。采用参与式方法让利益相关者参与应用程序的创建。基于技术接受与使用统一理论2中概述的因素，应用程序的可接受性对其成功采用至关重要。参与者自愿参与，签署知情同意书，年龄大于18岁且法语流利。通过定性访谈、视频展示、调查和个人半结构化访谈进行数据收集，随后进行定量和定性数据分析。
共有11名医护人员、6名囊性纤维化患者和5名研究人员参与了协同设计阶段。该阶段的结果促成了一款名为MUCO_BALAD的应用程序的共同构建，该应用程序专为18岁及以上的囊性纤维化患者、医护人员和研究人员设计，用于监测囊性纤维化患者身体活动的决策平衡。在可接受性评估阶段，样本包括47名医护人员、44名囊性纤维化患者和12名研究人员。分析表明，可接受性指标呈阳性，且应用程序的可接受性不因用户类型而异。半结构化访谈有助于识别对应用程序及其界面以及缺失功能的正面和负面看法。
本研究评估了一款应用程序的可接受性，并展示了有前景的定性和定量结果。根据本研究获得的宝贵见解，用于测量囊性纤维化患者身体活动决策平衡的数字工具对医护人员、囊性纤维化患者和研究人员来说是令人鼓舞的。
