Ladune Raphaëlle, Filleul Valentine, Falzon Charlène, Hayotte Meggy, Mély Laurent, Vallier Jean-Marc, Gruet Mathieu, Vuillemin Anne, d'Arripe-Longueville Fabienne
Université Côte-d'Azur, LAMHESS, Nice, France.
Université de Toulon, Laboratoire IAPS, Toulon, France.
Physiother Theory Pract. 2023 Jan;39(1):117-127. doi: 10.1080/09593985.2021.2005201. Epub 2021 Nov 30.
Physical activity (PA) is a proven therapeutic tool to increase the quality of life and life expectancy in people with cystic fibrosis (pwCF). Despite this, the PA level of pwCF is lower than recommended.
This study was conducted to identify the barriers to and facilitators of PA in adults with CF with heterogeneous severity.
Twenty adults with CF (mean age = 33.3±11.7 years, mean FEV1% = 50.55±20.4%) were recruited from two specialized centers and interviewed about the factors that limit and facilitate their PA. The collected data were transcribed, coded and analyzed using deductive and inductive methods.
Barriers and facilitators were classified into physical, psychological and environmental dimensions. The main barriers were fatigue, breathing difficulties, lack of available facilities, negative perceptions of PA and perceived health risks. The most important facilitators were respiratory benefits, well-being, and social support.
Although some barriers and facilitators were similar to those found in children with CF or adults from other vulnerable populations, others were specific to adults with CF, such as the risk of cross-contamination and transplant preparation. The comprehensive study of the barriers and facilitators in adults will enhance PA counseling for pwCF and help improve their compliance with PA recommendations.
体育活动（PA）是一种经证实的治疗手段，可提高囊性纤维化患者（pwCF）的生活质量和预期寿命。尽管如此，pwCF的体育活动水平低于推荐水平。
本研究旨在确定不同严重程度的成年CF患者进行体育活动的障碍和促进因素。
从两个专业中心招募了20名成年CF患者（平均年龄=33.3±11.7岁，平均第一秒用力呼气容积百分比=50.55±20.4%），并就限制和促进他们进行体育活动的因素进行访谈。使用演绎和归纳方法对收集到的数据进行转录、编码和分析。
障碍和促进因素分为身体、心理和环境维度。主要障碍是疲劳、呼吸困难、缺乏可用设施、对体育活动的负面看法以及感知到的健康风险。最重要的促进因素是对呼吸有益、幸福感和社会支持。
尽管一些障碍和促进因素与CF儿童或其他弱势群体中的成年人相似，但其他一些则是成年CF患者所特有的，如交叉污染风险和移植准备。对成年人障碍和促进因素的综合研究将加强对pwCF的体育活动咨询，并有助于提高他们对体育活动建议的依从性。
