Department of Neurology University of Pennsylvania Philadelphia PA USA.
J Am Heart Assoc. 2024 Aug 6;13(15):e035176. doi: 10.1161/JAHA.124.035176. Epub 2024 Jul 31.
Stroke knowledge is critical to treatment adherence and poststroke outcomes. Here, we aimed to quantify the impact of a personalized video-based educational platform to test the hypothesis that it improves patient satisfaction and stroke knowledge.
In a single-center pilot randomized trial, all patients with stroke and caregivers received standard stroke education during the hospitalization, but half were randomized to receive access to MyStroke, a personalized educational platform that provided brief videos about their stroke, risk factors, medications, and poststroke lifestyle. Satisfaction, stroke knowledge, and quality of life were assessed 7, 30, and 90 days after discharge. A total of 120 subjects (96 patients and 24 caregivers) were randomized to standard education (n=59) or MyStroke. At 90 days post-stroke, those who received MyStroke were more likely to be satisfied with the stroke education the received (90% versus 73%, =0.05) and more likely to correctly identify their stroke cause (67% versus 32%, =0.003). However, MyStroke was not associated with a difference in self-reported quality of life (EuroQol Visual Analogue Scale: 80 versus 75, =0.06) or general stroke knowledge (total Stroke Patient Education Retention: 5 versus 5, =0.47). With respect to secondary end points, MyStroke increased risk factor awareness 7 and 30 days poststroke, but this difference was not significant at 90 days.
The MyStroke personalized video-based education platform improved patient and caregiver satisfaction while improving some aspects of personalized stroke knowledge without improving general stroke knowledge. A multicenter trial is needed to confirm these results, clarify generalizability, and target clinically relevant metrics such as stroke recurrence or adherence.
URL: https://www.clinicaltrials.gov; Unique identifier: NCT05118503.
脑卒中知识对于治疗依从性和脑卒中后结局至关重要。在此，我们旨在量化基于个性化视频的教育平台的影响，以检验其提高患者满意度和脑卒中知识的假设。
在一项单中心的试点随机试验中，所有脑卒中患者及其照顾者在住院期间都接受了标准的脑卒中教育，但其中一半被随机分配到 MyStroke 个性化教育平台，该平台提供了关于其脑卒中、危险因素、药物和脑卒中后生活方式的简短视频。出院后 7、30 和 90 天评估满意度、脑卒中知识和生活质量。共 120 名患者（96 名患者和 24 名照顾者）被随机分配到标准教育组（n=59）或 MyStroke 组。在脑卒中后 90 天，接受 MyStroke 的患者对所接受的脑卒中教育更满意（90%对 73%，=0.05），更有可能正确识别脑卒中的原因（67%对 32%，=0.003）。然而，MyStroke 与自我报告的生活质量（欧洲五维健康量表：80 对 75，=0.06）或一般脑卒中知识（脑卒中患者教育保留总分：5 对 5，=0.47）无差异。就次要终点而言，MyStroke 在脑卒中后 7 和 30 天增加了危险因素意识，但在 90 天无显著差异。
MyStroke 个性化视频教育平台提高了患者和照顾者的满意度，同时提高了一些个性化脑卒中知识方面的知识，而不提高一般脑卒中知识。需要进行多中心试验来证实这些结果，明确其普遍性，并针对与临床相关的指标，如脑卒中复发或依从性进行靶向研究。
