Novak-Pavlic Monika, Grgić Vedrana, Vlašić Katarina, Ilicic Ana-Maria, Dežmar Dina, Abramović Ivona, Di Rezze Briano, Macedo Luciana, Rosenbaum Peter
School of Rehabilitation Science, McMaster University, Hamilton, Canada.
CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Canada.
Disabil Rehabil. 2025 Mar;47(6):1501-1511. doi: 10.1080/09638288.2024.2375436. Epub 2024 Jul 31.
To explore the impact of the online ENVISAGE program for parents of children with neurodevelopmental disabilities (NDD) on parents' perception of , their , and their , as well as to explore experiences of participating in the program in Croatia.
In this before-after discourse analysis study, participants took part in the five-week ENVISAGE program. There were two semi-structured interviews for each participant: within one month before and after participating in the program. The proportions of positive, neutral, and negative sentences about , their , and their from two interviews were compared on an individual and group level. The perceived changes and experiences with the program were also analyzed qualitatively.
Data from thirteen participants were included. From the three pre-determined discourse categories (self, child, and family), most changes were observed in parents' perception of (average increase in positive views of 8.8% and decrease in negative of 5.3%). Qualitative results showed multiple positive self-perceived impacts on parents' lives. Participants' experiences with ENVISAGE were consistently positive; all believed they benefited from the program.
The results support our assumption that participation in ENVISAGE positively affects multiple areas of life, particularly parents' views of themself.
探讨针对神经发育障碍(NDD)儿童家长的在线ENVISAGE项目对家长对自身、孩子及家庭的认知的影响,以及探索克罗地亚家长参与该项目的体验。
在这项前后对比的话语分析研究中,参与者参加了为期五周的ENVISAGE项目。每位参与者进行了两次半结构化访谈:分别在参加项目前一个月内和参加项目后。在个体和群体层面上,比较了两次访谈中关于自身、孩子及家庭的积极、中性和消极语句的比例。还对项目的感知变化和体验进行了定性分析。
纳入了13名参与者的数据。在三个预先确定的话语类别(自我、孩子和家庭)中,家长对自身的认知变化最为明显(对自身的积极看法平均增加8.8%,消极看法减少5.3%)。定性结果显示,该项目对家长的生活产生了多重积极的自我感知影响。参与者对ENVISAGE项目的体验一直是积极的;所有人都认为他们从该项目中受益。
结果支持了我们的假设,即参与ENVISAGE项目对生活的多个方面有积极影响,尤其是家长对自身的看法。