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实施和定性分析新小儿胃造口管家庭的同伴支持。

Implementation and Qualitative Analysis of Peer Support for New Pediatric Gastrostomy Tube Families.

机构信息

Department of Surgery, University of Rochester Medical Center, Rochester, New York.

Department of Surgery, University of Rochester Medical Center, Rochester, New York.

出版信息

J Surg Res. 2024 Oct;302:92-99. doi: 10.1016/j.jss.2024.06.032. Epub 2024 Aug 1.

DOI:10.1016/j.jss.2024.06.032
PMID:39094261
Abstract

INTRODUCTION

Gastrostomy tube (G-tube) insertion in children has frequent complications, including dislodgment and return to the system, which are associated with emotional burden for caregivers. To address these issues, we developed a peer support program for caregivers of children with new G-tubes and aimed to explore program feasibility and acceptability.

METHODS

The G-tube Buddy Program is a peer support program that pairs an experienced G-tube caregiver with new G-tube caregivers. Between April 2022 and December 2022, seven mentors and 21 mentees participated in the program. Five mentors and ten mentees participated in semi-structured focus groups and interviews. Transcripts were analyzed using both inductive and deductive qualitative methods.

RESULTS

We identified five prominent domains: peer support relationship dynamics; mentor and mentee-specific factors; determinants of program success; mentor and mentee perception of the program; and suggestions for program improvement. These domains encompassed main themes: support consisted primarily of assistance with daily life and social and emotional support; texting was usually the preferred communication method; mentee satisfaction is rooted in humanness, teaching, and generation of hope; mentors participated due to positive feelings regarding helping new caregivers with financial motivation being less important; and, participants perceived the program as a valuable source of support for new caregivers that complements and expands the reach of care they receive from clinical providers.

CONCLUSIONS

A peer support model for families with new G-tubes appears feasible and acceptable from participant perspectives. Responses validate the program's potential to add value to the postoperative care of children with G-tubes and will guide program optimization.

摘要

简介

儿童胃管(G-管)插入术常发生并发症,包括移位和返回系统,这给照料者带来了情绪负担。为了解决这些问题,我们为新置 G-管的儿童照料者开发了一个同伴支持计划,并旨在探索该计划的可行性和可接受性。

方法

G-管伙伴计划是一个同伴支持计划,将有经验的 G-管照料者与新的 G-管照料者配对。在 2022 年 4 月至 2022 年 12 月期间,7 名导师和 21 名学员参加了该计划。5 名导师和 10 名学员参加了半结构式焦点小组和访谈。使用归纳和演绎定性方法分析转录本。

结果

我们确定了五个突出的领域:同伴支持关系动态;导师和学员的具体因素;计划成功的决定因素;导师和学员对计划的看法;以及改进计划的建议。这些领域包含了主要主题:支持主要包括日常生活援助以及社会和情感支持;短信通常是首选的沟通方式;学员的满意度源于人性化、教学和希望的产生;导师参与是因为对帮助新照料者的积极感受,经济动机的重要性较低;参与者认为该计划是新照料者的宝贵支持来源,补充并扩大了他们从临床提供者那里获得的护理范围。

结论

从参与者的角度来看,新 G-管家庭的同伴支持模式似乎是可行且可接受的。这些反应验证了该计划为 G-管儿童术后护理增加价值的潜力,并将指导计划优化。

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