do Rosário Francisco Sobral, Soares Marta, Mesquita Filipe, Raposo João Filipe
Diabetology Department, APDP-Diabetes Portugal, Rua Rodrigo da Fonseca, 1, 1250-189 Lisbon, Portugal.
Narrative & Medicine Research Group at CEAUL-ULICES (Lisbon University Center for English Studies), Lisbon, Portugal.
Diabetol Int. 2024 May 27;15(3):550-561. doi: 10.1007/s13340-024-00731-8. eCollection 2024 Jul.
Hypoglycemia constitutes a communication barrier between youth with type 1 diabetes, their family members and health professionals. A narrative tool may contribute to a more effective communication.
Semi-structured interviews with six open-ended questions using narrative techniques collect and analyze (thematic and comparative analysis) different ways of "naming" the lived experience of hypoglycemia.
103 participants, 40 with type 1 Diabetes aged 10-18 years (17 female), 63 relatives (40 female). Group 1 (G1), 10-14 years old (n = 21), Group 2 (G2), 15-18 years old (n = 19), Group 3 (G3) relatives, 30-59 years old. G3 was divided, G3.1: female (n = 42) and G3.2: male (n = 21).G1 and G2 presents greater attention to symptoms. G1 refers a greater need for help, G2 emphasizes autonomy. G2 and G3 describes better the medical protocol. G1 and G2 refer more topics such as "discomfort", "frustration", "obligation", "difficulty in verbalizing", G3 refers to "gilt", "fear" and "responsibility". G3.1 refer more "symptoms", "responsibility", "fault", "incapacity".
A narrative tool enhances the singularity of a common experience, proving itself useful to adolescents, relatives, and healthcare professionals.
In addition to gathering information that is usually acquired empirically, a narrative tool exposes knowledge gaps and may allow implementing intervention strategies.
低血糖是1型糖尿病青少年及其家庭成员与医疗专业人员之间的沟通障碍。一种叙事工具可能有助于更有效的沟通。
采用叙事技巧，通过六个开放式问题进行半结构化访谈，收集并分析（主题分析和比较分析）“命名”低血糖生活经历的不同方式。
103名参与者，40名10 - 18岁的1型糖尿病患者（17名女性），63名亲属（40名女性）。第1组（G1），10 - 14岁（n = 21），第2组（G2），15 - 18岁（n = 19），第3组（G3）亲属，30 - 59岁。G3组再分为G3.1：女性（n = 42）和G3.2：男性（n = 21）。G1组和G2组对症状的关注度更高。G1组表示更需要帮助，G2组强调自主性。G2组和G3组对医疗方案的描述更好。G1组和G2组提及更多诸如“不适”“沮丧”“义务”“难以用言语表达”等话题，G3组提及“内疚”“恐惧”和“责任”。G3.1组提及更多“症状”“责任”“过错”“无能力”。
一种叙事工具增强了共同经历的独特性，证明其对青少年、亲属和医疗保健专业人员有用。
除了收集通常通过经验获得的信息外，一种叙事工具还能揭示知识差距，并可能有助于实施干预策略。
