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HEALthy 大脑与儿童发展研究(HBCD)经验:在一项纵向、多方法的早期儿童研究中招募和保留多样化的家庭。

The HEALthy Brain and Child Development Study (HBCD) experience: Recruiting and retaining diverse families in a longitudinal, multi-method early childhood study.

机构信息

University of Maryland, 3942 Campus Drive, Suite 3304, College Park, MD 20742, United States.

University of Maryland, 3942 Campus Drive, Suite 3304, College Park, MD 20742, United States.

出版信息

Dev Cogn Neurosci. 2024 Oct;69:101421. doi: 10.1016/j.dcn.2024.101421. Epub 2024 Jul 25.

Abstract

The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, and emotional development beginning prenatally and planned through early childhood. Given its aim to examine the impact of adversity and protective factors on children's outcomes, the recruitment and retention of families who have a wide diversity in experiences are essential. However, the unfortunate history of inequitable treatment of underrepresented families in research and the risks with which some participants will contend (e.g., substance use) makes their recruitment and retention in social science and neuroscience research particularly challenging. This article explores strategies that the HBCD Study has developed to recruit and retain participants, including marginalized, underserved, and hard-to-reach populations, capitalizing on the extant literature and the researchers' own experiences. In this paper, we address strategies to recruit and retain families within HBCD, including: 1) creating experiences that engender trust and promote relationships; 2) maintaining connections with participants over time; 3) ensuring appropriate compensation and supports; 4) considerations for study materials and procedures; and 5) community engagement. The implementation of these strategies may increase representation and inclusiveness, as well as improve the quality of the resulting data.

摘要

HEALthy 大脑与儿童发展(HBCD)研究是一项多地点前瞻性纵向队列研究,将从产前开始,计划贯穿整个儿童早期,研究人类大脑、认知、行为、社会和情感发展。鉴于其旨在研究逆境和保护因素对儿童结果的影响,招募和保留具有广泛经验多样性的家庭至关重要。然而,不幸的是,代表性不足的家庭在研究中受到不平等对待的历史以及一些参与者将面临的风险(例如,药物使用)使得他们在社会科学和神经科学研究中的招募和保留特别具有挑战性。本文探讨了 HBCD 研究为招募和保留参与者而制定的策略,包括边缘化、服务不足和难以接触的人群,利用现有文献和研究人员自己的经验。在本文中,我们将介绍 HBCD 内部招募和保留家庭的策略,包括:1)营造建立信任和促进关系的体验;2)随着时间的推移与参与者保持联系;3)确保适当的补偿和支持;4)考虑研究材料和程序;以及 5)社区参与。这些策略的实施可能会增加代表性和包容性,并提高所得数据的质量。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fe15/11347061/05970e16d965/gr1.jpg

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