• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

癌症数据质量与整合面临进一步挑战。

Facing further challenges in cancer data quality and harmonisation.

作者信息

Giusti Francesco, Martos Carmen, Carvalho Raquel N, Zadnik Vesna, Visser Otto, Bettio Manola, Van Eycken Liesbet

机构信息

European Commission, Directorate General Joint Research Centre, Ispra, VA, Italy.

Belgian Cancer Registry, Brussels, Belgium.

出版信息

Front Oncol. 2024 Jul 25;14:1438805. doi: 10.3389/fonc.2024.1438805. eCollection 2024.

DOI:10.3389/fonc.2024.1438805
PMID:39119089
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11307262/
Abstract

This article highlights the recent and ongoing activities of European population-based cancer registries (PBCRs) in data quality and harmonisation in the framework of the collaboration between the European Network of Cancer Registries (ENCR) and the Directorate-General Joint Research Centre (JRC), the science and knowledge centre of the European Commission. The article concludes the Frontiers in Oncology's Research Topic "Joining Efforts to Improve Data Quality and Harmonization Among European Population-Based Cancer Registries", which has been an opportunity for several European researchers to share their experience on cancer data quality and harmonisation. Such experience will be helpful for PBCRs in view of future challenges and opportunities in cancer epidemiology, with a few examples discussed in the present article.

摘要

本文重点介绍了欧洲基于人群的癌症登记处(PBCRs)近期及正在开展的活动,这些活动围绕欧洲癌症登记网络(ENCR)与欧盟委员会科学知识中心——联合研究中心(JRC)合作框架下的数据质量与协调工作展开。本文是《肿瘤学前沿》研究专题“携手提升欧洲基于人群的癌症登记处数据质量与协调性”的总结,该专题为多位欧洲研究人员提供了分享癌症数据质量与协调经验的契机。鉴于癌症流行病学未来面临的挑战与机遇,这些经验对PBCRs将有所助益,本文将讨论一些实例。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7cee/11307262/b6903f9cfd14/fonc-14-1438805-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7cee/11307262/b6903f9cfd14/fonc-14-1438805-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7cee/11307262/b6903f9cfd14/fonc-14-1438805-g001.jpg

相似文献

1
Facing further challenges in cancer data quality and harmonisation.癌症数据质量与整合面临进一步挑战。
Front Oncol. 2024 Jul 25;14:1438805. doi: 10.3389/fonc.2024.1438805. eCollection 2024.
2
The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS).联合研究中心-欧洲癌症登记处网络质量检查软件(JRC-ENCR QCS)
Front Oncol. 2023 Oct 26;13:1250195. doi: 10.3389/fonc.2023.1250195. eCollection 2023.
3
Quality indicators: completeness, validity and timeliness of cancer registry data contributing to the European Cancer Information System.质量指标:为欧洲癌症信息系统提供数据的癌症登记数据的完整性、有效性和及时性。
Front Oncol. 2023 Jul 28;13:1219128. doi: 10.3389/fonc.2023.1219128. eCollection 2023.
4
Comparison between two cancer registry quality check systems: functional features and differences in an Italian network of cancer registries dataset.两个癌症登记质量检查系统之间的比较:意大利癌症登记数据集网络中的功能特征与差异
Front Oncol. 2023 May 25;13:1197942. doi: 10.3389/fonc.2023.1197942. eCollection 2023.
5
Cancer treatment data available in European cancer registries: Where are we and where are we going?欧洲癌症登记处提供的癌症治疗数据:我们现在的状况以及未来的发展方向?
Front Oncol. 2023 Feb 8;13:1109978. doi: 10.3389/fonc.2023.1109978. eCollection 2023.
6
Population Based Cancer Registry of India – the Challenges and Opportunities.印度基于人群的癌症登记处——挑战与机遇
Asian Pac J Cancer Prev. 2018 Oct 26;19(10):2885-2889. doi: 10.22034/APJCP.2018.19.10.2885.
7
Cancer data quality and harmonization in Europe: the experience of the BENCHISTA Project - international benchmarking of childhood cancer survival by stage.欧洲癌症数据质量与协调:BENCHISTA项目的经验——儿童癌症生存按阶段的国际基准评估
Front Oncol. 2023 Aug 22;13:1232451. doi: 10.3389/fonc.2023.1232451. eCollection 2023.
8
A sustainable solution for the activities of the European network for surveillance of congenital anomalies: EUROCAT as part of the EU Platform on Rare Diseases Registration.欧洲先天性异常监测网络活动的可持续解决方案:作为欧盟罕见病注册平台一部分的EUROCAT
Eur J Med Genet. 2018 Sep;61(9):513-517. doi: 10.1016/j.ejmg.2018.03.008. Epub 2018 Mar 27.
9
Geographical and temporal differences in gastric and oesophageal cancer registration by subsite and morphology in Europe.欧洲胃癌和食管癌按亚部位及形态学进行登记的地理和时间差异
Front Oncol. 2024 Feb 20;14:1250107. doi: 10.3389/fonc.2024.1250107. eCollection 2024.
10
Uses of cancer registries for public health and clinical research in Europe: Results of the European Network of Cancer Registries survey among 161 population-based cancer registries during 2010-2012.欧洲癌症登记处用于公共卫生和临床研究的情况:欧洲癌症登记处网络在2010 - 2012年期间对161个基于人群的癌症登记处的调查结果。
Eur J Cancer. 2015 Jun;51(9):1039-49. doi: 10.1016/j.ejca.2014.07.016. Epub 2014 Aug 15.

引用本文的文献

1
Cancer burden in Europe: a systematic analysis of the GLOBOCAN database (2022).欧洲的癌症负担:对全球癌症数据库(2022年)的系统分析
BMC Cancer. 2025 Mar 12;25(1):447. doi: 10.1186/s12885-025-13862-1.

本文引用的文献

1
Geographical and temporal differences in gastric and oesophageal cancer registration by subsite and morphology in Europe.欧洲胃癌和食管癌按亚部位及形态学进行登记的地理和时间差异
Front Oncol. 2024 Feb 20;14:1250107. doi: 10.3389/fonc.2024.1250107. eCollection 2024.
2
Complete cancer prevalence in Europe in 2020 by disease duration and country (EUROCARE-6): a population-based study.2020 年按疾病持续时间和国家划分的欧洲癌症总患病率(EUROCARE-6):一项基于人群的研究。
Lancet Oncol. 2024 Mar;25(3):293-307. doi: 10.1016/S1470-2045(23)00646-0. Epub 2024 Jan 30.
3
Advancing data collection and analysis: 2023 revised European Network of Cancer Registries recommendations for standard dataset.
推进数据收集与分析:2023年欧洲癌症登记处网络标准数据集修订建议
Eur J Cancer. 2024 Mar;199:113557. doi: 10.1016/j.ejca.2024.113557. Epub 2024 Jan 18.
4
2022 revised European recommendations for the coding of the basis of diagnosis of cancer cases in population-based cancer registries.2022年修订的欧洲关于基于人群的癌症登记处癌症病例诊断依据编码的建议。
Front Oncol. 2023 Dec 12;13:1250549. doi: 10.3389/fonc.2023.1250549. eCollection 2023.
5
The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS).联合研究中心-欧洲癌症登记处网络质量检查软件(JRC-ENCR QCS)
Front Oncol. 2023 Oct 26;13:1250195. doi: 10.3389/fonc.2023.1250195. eCollection 2023.
6
Projecting cancer prevalence by phase of care: a methodological approach for health service planning.按护理阶段预测癌症患病率:一种用于卫生服务规划的方法学途径。
Front Oncol. 2023 Aug 30;13:1201464. doi: 10.3389/fonc.2023.1201464. eCollection 2023.
7
Cancer data quality and harmonization in Europe: the experience of the BENCHISTA Project - international benchmarking of childhood cancer survival by stage.欧洲癌症数据质量与协调:BENCHISTA项目的经验——儿童癌症生存按阶段的国际基准评估
Front Oncol. 2023 Aug 22;13:1232451. doi: 10.3389/fonc.2023.1232451. eCollection 2023.
8
Nordcan.R: a new tool for federated analysis and quality assurance of cancer registry data.Nordcan.R:癌症登记数据联合分析与质量保证的新工具。
Front Oncol. 2023 Aug 8;13:1098342. doi: 10.3389/fonc.2023.1098342. eCollection 2023.
9
Quality indicators: completeness, validity and timeliness of cancer registry data contributing to the European Cancer Information System.质量指标:为欧洲癌症信息系统提供数据的癌症登记数据的完整性、有效性和及时性。
Front Oncol. 2023 Jul 28;13:1219128. doi: 10.3389/fonc.2023.1219128. eCollection 2023.
10
Incidence and time trends of childhood hematological neoplasms: a 36-year population-based study in the southern European context, 1983-2018.儿童血液系统肿瘤的发病率及时间趋势:一项基于1983年至2018年南欧地区36年人口数据的研究
Front Oncol. 2023 Jul 25;13:1197850. doi: 10.3389/fonc.2023.1197850. eCollection 2023.