Eder Cheryl, Roomaney Rizwana
Stellenbosch University, South Africa.
J Health Psychol. 2025 Jun;30(7):1610-1623. doi: 10.1177/13591053241266249. Epub 2024 Aug 10.
There is a lack of research on gender diverse people's experiences with endometriosis. We explored the experience of 11 transgender and non-binary people with endometriosis using phenomenology. We collected data through multiple interviews and diaries and constructed two themes using hermeneutic analysis: (1) Unhomelikeness of Living with Endometriosis and being Gender Diverse, and (2) Towards a Homelikeness of Living with Endometriosis as a Gender Diverse Individual, which we discussed in relation to Svenaeus Phenomenology of Medicine. Unhomelikeness is an experience of disconnection with our bodies and being-in-the-world as a result of living with a chronic disease. We show how gender diverse people with endometriosis may have additional layers of unhomelikeness due to further diagnostic delays, endometriosis symptoms that may trigger gender dysphoria and experiences with treatment that are not inclusive of their gender identity. We advocate for additional support and awareness for gender diverse people with endometriosis.
关于性别多元者患子宫内膜异位症的经历,目前缺乏相关研究。我们采用现象学方法,探究了11位患有子宫内膜异位症的跨性别者和非二元性别者的经历。我们通过多次访谈和日记收集数据,并运用诠释学分析构建了两个主题:(1)患有子宫内膜异位症且性别多元的生活缺乏归属感,以及(2)作为性别多元个体,朝着患有子宫内膜异位症的生活拥有归属感的方向发展,我们结合斯文内乌斯的医学现象学对这两个主题进行了讨论。缺乏归属感是一种因患有慢性病而与我们的身体以及在世状态脱节的体验。我们展示了患有子宫内膜异位症的性别多元者如何因进一步的诊断延误、可能引发性别焦虑症的子宫内膜异位症症状以及不包容其性别认同的治疗经历,而可能有更多层次的缺乏归属感。我们倡导为患有子宫内膜异位症的性别多元者提供更多支持并提高公众意识。