Maar Marion, Bourdon Caleigh, Berti Joahnna, Bisaillon Emma, Boesch Lisa, Boston Alicia, Chapdelaine Justin, Humphrey Alison, Kumar Sandeep, Maar-Jackson Benjamin, Martell Robert, Naokwegijig Bruce, Preet Kaur Davinder, Rice Sarah, Rickaby Barbara, Sutherland Mariette, Reade Maurianne
Human Sciences Division, Northern Ontario School of Medicine (NOSM) University, Sudbury, ON, Canada.
Undergraduate Medical Education, Northern Ontario School of Medicine (NOSM) University, Sudbury, ON, Canada.
JMIR Form Res. 2024 Aug 12;8:e52884. doi: 10.2196/52884.
Participating in surveys can shape the perception of participants related to the study topic. Administering a vaccine hesitancy questionnaire can have negative impacts on participants' vaccine confidence. This is particularly true for online and cross-cultural data collection because culturally safe health education to correct misinformation is typically not provided after the administration of an electronic survey.
To create a culturally safe, online, COVID-19 vaccine confidence survey for Indigenous youth designed to collect authentic, culturally relevant data of their vaccine experiences, with a low risk of contributing to further vaccine confusion among participants.
Using the Aboriginal Telehealth Knowledge Circle consensus method, a team of academics, health care providers, policy makers, and community partners reviewed COVID-19 vaccine hesitancy surveys used in public health research, analyzed potential risks, and created a framework for electronic Indigenous vaccine confidence surveys as well as survey items.
The framework for safer online survey items is based on 2 principles, a first do-no-harm approach and applying a strengths-based lens. Relevant survey domains identified in the process include sociodemographic information, participants' connection to their community, preferred sources for health information, vaccination uptake among family members and peers, as well as personal attitudes toward vaccines. A total of 44 survey items were developed, including 5 open-ended items to improve the authenticity of the data and the analysis of the experiences of Indigenous youth.
Using an Indigenous consensus method, we have developed an online COVID-19 vaccine confidence survey with culturally relevant domains and reduced the risk of amplifying misinformation and negative impacts on vaccine confidence among Indigenous participants. Our approach can be adapted to other online survey development in collaboration with Indigenous communities.
参与调查会影响参与者对研究主题的认知。发放疫苗犹豫调查问卷可能会对参与者的疫苗信心产生负面影响。对于在线和跨文化数据收集而言尤其如此，因为在进行电子调查后，通常不会提供具有文化安全性的健康教育来纠正错误信息。
为原住民青年创建一项具有文化安全性的在线COVID-19疫苗信心调查，旨在收集与他们疫苗经历相关的真实、具有文化相关性的数据，同时降低加剧参与者疫苗困惑的风险。
采用原住民远程医疗知识圈共识方法，一个由学者、医疗保健提供者、政策制定者和社区合作伙伴组成的团队审查了公共卫生研究中使用的COVID-19疫苗犹豫调查问卷，分析了潜在风险，并创建了电子原住民疫苗信心调查的框架以及调查项目。
更安全的在线调查项目框架基于两项原则，即首先不造成伤害的方法和采用基于优势的视角。在此过程中确定的相关调查领域包括社会人口统计学信息、参与者与社区的联系、健康信息的首选来源、家庭成员和同龄人中的疫苗接种情况，以及个人对疫苗的态度。总共制定了44个调查项目，包括5个开放式项目，以提高数据的真实性以及对原住民青年经历的分析。
通过使用原住民共识方法，我们开发了一项具有文化相关领域的在线COVID-19疫苗信心调查，并降低了在原住民参与者中放大错误信息和对疫苗信心产生负面影响的风险。我们的方法可与原住民社区合作，应用于其他在线调查的开发。
