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超越生物学的健康:扩展健康假说与技术。

Health beyond biology: the extended health hypothesis and technology.

机构信息

University Hospital Centre Zagreb, Internal clinic, Department of endocrinology and diabetes, Zagreb, Croatia.

Faculty of Philosophy, Auburn University, Auburn, Alabama, USA.

出版信息

Monash Bioeth Rev. 2024 Dec;42(2):279-283. doi: 10.1007/s40592-024-00206-1. Epub 2024 Aug 14.

Abstract

There are ethical dilemmas faced by clinicians when responding to using unregistered medical devices, such as innovative internet technologies for managing type 1 diabetes mellitus. This chronic disease significantly impacts patients' health, requiring intensive daily activities like blood glucose monitoring, insulin injections, and specific dietary recommendations. Recent technological advances, including continuous glucose monitors and insulin pumps, have been shown to improve glycemic control. Di-it Yourself Artificial Pancreas Systems are emerging open-source automated delivery methods initiated by the diabetes community, although they are not clinically evaluated and present a liability challenge for healthcare providers. To use them or not? Should parents and healthcare providers use such technology that helps, but is not proven?Having all of that in mind, we argue that the World Health Organization's (WHO) definition of health is outdated, advocating for the "Extended Health Hypothesis". This hypothesis claims that health extends beyond traditional biological boundaries to include essential functional structures like diabetes-related technology, making technology a part of a patient's health. This view aligns with the "Extended Mind Hypothesis," suggesting that health should include elements beyond organic material if they are vital to a patient's functions.In the commentary, we highlight that both naturalist and normative conceptions of health support the extended health hypothesis, emphasizing that human health is not confined to organic material. This perspective raises critical questions about whether devices like insulin pumps and continuous glucose monitors are integral to a patient's health and whether their malfunction constitutes a form of disease. Devices are considered integral to health, there is no ethical dilemma in using unregistered medical devices for managing type 1 diabetes. Finally, we call for reevaluating the definitions of health and patients, particularly for children with type 1 diabetes using advanced technologies. It asserts that the optimal use of such devices represents a new form of health, creating a health-device symbiosis that should be evaluated with the child's best interests in mind.

摘要

当应对使用未注册医疗器械(如管理 1 型糖尿病的创新互联网技术)时,临床医生会面临伦理困境。这种慢性病会显著影响患者的健康,需要患者进行日常的密集活动,如血糖监测、胰岛素注射和特定的饮食建议。最近的技术进步,包括连续血糖监测仪和胰岛素泵,已被证明可以改善血糖控制。DIY 人工胰腺系统是由糖尿病患者社区发起的新兴开源自动化输送方法,尽管它们尚未经过临床评估,并对医疗保健提供者构成责任挑战。用还是不用?家长和医疗保健提供者是否应该使用这种有帮助但未经证实的技术?考虑到所有这些因素,我们认为世界卫生组织(WHO)的健康定义已经过时,主张“扩展健康假说”。该假说声称,健康超越了传统的生物界限,包括与糖尿病相关的技术等必要的功能结构,使技术成为患者健康的一部分。这种观点与“扩展思维假说”一致,表明如果某些元素对患者的功能至关重要,那么健康就应该包括超越有机物质的元素。在评论中,我们强调自然主义和规范主义的健康概念都支持扩展健康假说,强调人类健康不仅限于有机物质。这一观点提出了一些关键问题,即胰岛素泵和连续血糖监测仪等设备是否是患者健康的重要组成部分,以及它们的故障是否构成疾病的一种形式。如果设备被认为是健康的重要组成部分,那么在管理 1 型糖尿病时使用未注册的医疗器械就不存在伦理困境。最后,我们呼吁重新评估健康和患者的定义,特别是对于使用先进技术的 1 型糖尿病儿童。它断言,这些设备的最佳使用代表了一种新的健康形式,创造了一种健康与设备共生的关系,这需要考虑到孩子的最佳利益进行评估。

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