Stalls Juliann M, Dorfman Caroline S, Divakaran Smrithi, Acharya Kelly, Sperling Jessica, Woodward Julia T, Plumb Vilardaga Jennifer, Corbett Cheyenne, Oeffinger Kevin, Shelby Rebecca A
Department of Psychiatry and Behavioral Sciences, Duke University School of Medicine, Durham, North Carolina, USA.
Duke Cancer Institute, Supportive Care and Survivorship Center, Durham, North Carolina, USA.
J Adolesc Young Adult Oncol. 2025 Feb;14(1):113-117. doi: 10.1089/jayao.2024.0025. Epub 2024 Aug 19.
This study aimed to characterize unmet reproductive health needs of female young adult survivors of childhood cancer (YASCC), as understood by oncology providers ( = 10) caring for this patient population. Providers completed brief online questionnaires and a one-time semi-structured interview. Descriptive statistics characterized quantitative data, and rapid qualitative analysis identified themes in interview data. In survey data, providers rated fertility as a top concern among YASCC. Qualitative data identified specific under-addressed reproductive sexual health information needs for patients and also for their providers. The results provide preliminary knowledge to inform the development of behavioral interventions to address patients' unmet needs.
本研究旨在描述儿童癌症成年幸存者（YASCC）未得到满足的生殖健康需求，这是由照料该患者群体的肿瘤学医护人员（n = 10）所理解的。医护人员完成了简短的在线问卷和一次性半结构化访谈。描述性统计对定量数据进行了特征描述，快速定性分析确定了访谈数据中的主题。在调查数据中，医护人员将生育能力列为YASCC最关心的问题。定性数据确定了患者及其医护人员在生殖/性健康信息方面未得到充分解决的具体需求。研究结果提供了初步知识，为制定行为干预措施以满足患者未得到满足的需求提供参考。
