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Prognostic imagination: Genetic counseling amidst therapeutic innovation and evolving futures.预后想象：治疗创新和不断变化的未来中的遗传咨询。
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4
Non-respiratory health-related quality of life in people with cystic fibrosis receiving elexacaftor/tezacaftor/ivacaftor.接受依列卡福妥/替扎卡福妥/依伐卡托治疗的囊性纤维化患者与非呼吸健康相关的生活质量
J Cyst Fibros. 2023 Jan;22(1):119-123. doi: 10.1016/j.jcf.2022.08.018. Epub 2022 Sep 14.
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Hastings Cent Rep. 2020 May;50(3):28-32. doi: 10.1002/hast.1128.
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The Shifting Landscape of Prenatal Testing: Between Reproductive Autonomy and Public Health.产前检测的变化格局：在生殖自主权与公共卫生之间。
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A Disability Critique of the Comparative View.

作者信息

Mueller Rebecca, Knight Amber, Sufian Sandy, Garland-Thomson Rosemarie

机构信息

University of Pennsylvania.

University of North Carolina.

出版信息

Am J Bioeth. 2024 Aug;24(8):40-42. doi: 10.1080/15265161.2024.2362101. Epub 2024 Aug 19.

DOI:10.1080/15265161.2024.2362101
PMID:39158435
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11335311/
Abstract
摘要