Hastings Cent Rep. 2020 May;50(3):28-32. doi: 10.1002/hast.1128.
In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) "Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations," which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule of law. We argue that interpreting these elements through disability justice entails a commitment to both distributive and recognitive justice. The disability rights movement's demand "Nothing about us, without us" requires substantive inclusion of disabled people in decision-making related to their interests, including in crisis planning before, during, and after a pandemic like Covid-19.
在本文中，我们建议了一些切实可行的方法，将危机护理标准的框架转向残疾正义。我们详细阐述了 2010 年美国医学研究所（国家医学院）“灾难情况下建立危机护理标准指南摘要”中提供的愿景声明，该声明强调公平、公平的程序、社区和提供者的参与、教育和沟通，以及法治。我们认为，通过残疾正义来解释这些要素，需要致力于分配正义和承认正义。残疾人权利运动的口号“没有我们，就没有我们”要求在大流行病（如新冠肺炎）之前、期间和之后的危机规划中，实质性地将残疾人纳入与他们的利益相关的决策中。
