van Munster Marlena, Czabanowska Katarzyna, Clemens Timo, Wieczorek Estera, Pedrosa David, Mestre Tiago A, Stümpel Johanne
Department of Neurology, Philipps University Marburg, 35043 Marburg, Germany.
Institute of General Medicine, Charité - Universitätsmedizin Berlin, Berlin, Germany.
Int J Nurs Stud Adv. 2024 Jun 12;7:100213. doi: 10.1016/j.ijnsa.2024.100213. eCollection 2024 Dec.
Through their expertise and diverse skills, Parkinson Nurses are key care providers for people with Parkinson's disease. They are seen as an important profession for person-centered and multidisciplinary care, considered priorities in Parkinson's care delivery. Currently, however, little is known about the priorities that this profession itself defines for the care of Parkinson's patients and how they perceive their own role in the care process.
To explore the perspective of Parkinson Nurses on care priorities in people with Parkinson's disease.
Qualitative study.
The iCare-PD study served as the object of study by establishing an interdisciplinary, person-centered and nurse-led care model in several European countries and Canada. The nurses who participated in this model were part of the study.
Six Parkinson Nurses participated in the study.
We conducted a thematic focus group, adopting the paradigm of pragmatism to draft an interview guide. The focus group was based on the inspiration card method and followed recommendations for co-creation processes.
Parkinson Nurses define care priorities for Parkinson's in areas of education, multi-professionalism, and need-orientation. They see themselves as mediators and coordinators of care delivery processes.
In line with international recommendations, Parkinson Nurses prioritize key aspects of multidisciplinary and person-centered care. At the same time, however, the nurses also name care priorities that go beyond the international recommendations. It is therefore crucial to integrate the perspective of this important profession into recommendations for the delivery of healthcare for people with Parkinson's.Tweetable abstract How do
帕金森病专科护士凭借其专业知识和多样技能，是帕金森病患者的关键护理提供者。他们被视为以患者为中心的多学科护理的重要职业，是帕金森病护理工作的重点。然而，目前对于该职业自身为帕金森病患者护理所确定的重点以及他们如何看待自己在护理过程中的角色，人们了解甚少。
探讨帕金森病专科护士对帕金森病患者护理重点的看法。
定性研究。
“iCare-PD研究”通过在几个欧洲国家和加拿大建立跨学科、以患者为中心且由护士主导的护理模式，成为了研究对象。参与该模式的护士是研究的一部分。
六名帕金森病专科护士参与了研究。
我们开展了一次主题焦点小组讨论，采用实用主义范式起草访谈指南。焦点小组基于灵感卡片法，并遵循共创过程的建议。
帕金森病专科护士确定了帕金森病护理在教育、多专业协作和需求导向等方面的重点。他们将自己视为护理提供过程的调解者和协调者。
与国际建议一致，帕金森病专科护士将多学科和以患者为中心护理的关键方面列为优先事项。然而，与此同时，护士们也提出了超出国际建议的护理重点。因此，将这一重要职业的观点纳入帕金森病患者医疗保健提供建议至关重要。可发推文的摘要：如何……
