Spry Erica, Seear Kimberley, Harkin Ben, O'Donnell Vicki, Maple-Brown Louise, Atkinson David, Kirkham Renae
Rural Clinical School of Western Australia, University of Western Australia, Broome, Western Australia, Australia.
Kimberley Aboriginal Medical Services, Broome, Western Australia, Australia.
Health Promot J Austr. 2025 Apr;36(2):e919. doi: 10.1002/hpja.919. Epub 2024 Aug 20.
In Australia, Aboriginal and Torres Strait Islander young people in remote settings are most-affected by young onset type 2 diabetes (T2D). It is necessary to understand young people's experiences, including factors impacting on self-management, to improve models of care.
A phenomenological methodology underpinned this qualitative study in Western Australia's Kimberley region. Two Aboriginal Community Controlled Health Services supported recruitment of seven Aboriginal young people aged 12-24 with T2D, who participated in interviews. A carer and health professional of one young person in each site were also interviewed and relevant medical record data reviewed to assist with triangulation of data. De-identified transcripts were inductively coded and a coding structure developed with oversight by a Kimberley Aboriginal researcher.
Young people reported varied experiences and emotions relating to a T2D diagnosis. Most recounted this was upsetting and some reported current negative impact on emotional wellbeing. Challenges with understanding and managing diabetes were highlighted, particularly regarding healthy eating, physical activity and medication. Family are a prominent source of self-management support, with the intergenerational impact of diabetes being evident for each participant. Positive relationships with health professionals, entailing continuity of care, were valued.
There are significant emotional and medical challenges for young people with T2D and their families. Recommendations from this work will contribute to the development of local resources and initiatives to improve diabetes-related support. SO WHAT?: Alongside broader efforts to support good health at the societal level, enhanced health education and family-oriented support structures including Aboriginal clinical staff for young people with T2D are needed.
在澳大利亚，偏远地区的原住民和托雷斯海峡岛民青年受早发性2型糖尿病（T2D）影响最为严重。有必要了解年轻人的经历，包括影响自我管理的因素，以改善护理模式。
本定性研究采用现象学方法，在西澳大利亚的金伯利地区开展。两家原住民社区控制的健康服务机构协助招募了7名年龄在12 - 24岁之间患有T2D的原住民青年，他们参与了访谈。每个地点还对一名年轻人的照顾者和健康专业人员进行了访谈，并审查了相关医疗记录数据，以协助进行数据三角验证。对去识别化的访谈记录进行归纳编码，并在一名金伯利原住民研究人员的监督下制定了编码结构。
年轻人报告了与T2D诊断相关的不同经历和情绪。大多数人表示这令人沮丧，一些人报告称目前对情绪健康有负面影响。突出了在理解和管理糖尿病方面的挑战，特别是在健康饮食、体育活动和药物治疗方面。家庭是自我管理支持的重要来源，糖尿病的代际影响在每位参与者身上都很明显。重视与健康专业人员建立积极的关系，包括持续护理。
患有T2D的年轻人及其家庭面临重大的情感和医疗挑战。这项研究的建议将有助于开发当地资源和举措，以改善与糖尿病相关的支持。那又如何？：除了在社会层面为促进健康做出更广泛的努力外，还需要加强健康教育以及为患有T2D的年轻人建立包括原住民临床工作人员在内的以家庭为导向的支持结构。
