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Difficulties of Access to Diagnostic Methods and Therapies in Movement Disorders: A Call to Action.运动障碍疾病诊断方法与治疗手段获取方面的困难:行动呼吁
Mov Disord Clin Pract. 2024 Jan;11(1):7-9. doi: 10.1002/mdc3.13904. Epub 2023 Nov 27.
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The impact of health insurance enrollment on health outcomes in Kenya.医疗保险参保对肯尼亚健康结果的影响。
Health Econ Rev. 2023 Aug 16;13(1):42. doi: 10.1186/s13561-023-00454-7.
3
Registration of essential medicines in Kenya, Tanzania and Uganda: a retrospective analysis.肯尼亚、坦桑尼亚和乌干达的基本药物注册:回顾性分析。
J R Soc Med. 2023 Oct;116(10):331-342. doi: 10.1177/01410768231181263. Epub 2023 Jun 21.
4
The lived experience of stigma and parkinson's disease in Kenya: a public health challenge.肯尼亚污名化与帕金森病的真实体验:公共健康挑战。
BMC Public Health. 2023 Feb 20;23(1):364. doi: 10.1186/s12889-023-15278-7.
5
Six Action Steps to Address Global Disparities in Parkinson Disease: A World Health Organization Priority.解决全球帕金森病差异的六个行动步骤:世界卫生组织的优先事项。
JAMA Neurol. 2022 Sep 1;79(9):929-936. doi: 10.1001/jamaneurol.2022.1783.
6
Letter: The World Health Organization's Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders 2022-2031.信函:世界卫生组织《2022-2031年癫痫和其他神经系统疾病部门间全球行动计划》
Neurosurgery. 2022 Jun 1;90(6):e201-e203. doi: 10.1227/neu.0000000000001976. Epub 2022 Apr 7.
7
The role of support groups in the management of Parkinson's disease in Kenya: Sociality, information and legitimacy.支持小组在肯尼亚帕金森病管理中的作用:社交性、信息和合法性。
Glob Public Health. 2022 Aug;17(8):1773-1783. doi: 10.1080/17441692.2021.1954227. Epub 2021 Jul 13.
8
"Old people problems", uncertainty and legitimacy: Challenges with diagnosing Parkinson's disease in Kenya.“老年人问题”、不确定性与合法性:肯尼亚帕金森病诊断面临的挑战
Soc Sci Med. 2021 Aug;282:114148. doi: 10.1016/j.socscimed.2021.114148. Epub 2021 Jun 17.
9
Availability of Therapies and Services for Parkinson's Disease in Africa: A Continent-Wide Survey.非洲帕金森病治疗方法和服务的可及性:一项全大陆范围的调查。
Mov Disord. 2021 Oct;36(10):2393-2407. doi: 10.1002/mds.28669. Epub 2021 Jun 3.
10
Parkinson's disease.帕金森病。
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肯尼亚帕金森病药物的可及性:定性探索。

Access to Medicines for Parkinson's Disease in Kenya: A Qualitative Exploration.

机构信息

Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK.

Aga Khan University Hospital, Nairobi, Kenya.

出版信息

Mov Disord Clin Pract. 2024 Nov;11(11):1373-1378. doi: 10.1002/mdc3.14192. Epub 2024 Aug 21.

DOI:10.1002/mdc3.14192
PMID:39166895
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11542282/
Abstract

BACKGROUND

The accessibility of Parkinson's disease medicines is limited across sub-Saharan Africa, which can have negative health, social and financial consequences for people with Parkinson's disease and their families. However, there is a stark gap in the literature regarding the impact of poor access to medicines on individuals.

OBJECTIVES

The study objective was to understand the accessibility of Parkinson's disease medicines in Kenya from the perspective of people with Parkinson's disease, their caregivers and neurologists.

METHODS

In-depth qualitative interviews were conducted with 55 people with Parkinson's disease, 23 caregivers and 8 neurologists to understand their experience regarding challenges with accessing Parkinson's disease medicines and the health, social and financial impact of poor availability and affordability.

RESULTS

Medicines for Parkinson's disease were deemed to be largely unavailable and unaffordable across Kenya. People with Parkinson's disease, caregivers and neurologists expressed the financial burden caused by long-term treatment in the absence of health insurance coverage. Further, barriers accessing medicines negatively impacted symptom control, social relations, and quality of life.

CONCLUSIONS

Access to Parkinson's disease medicines in Kenya is limited, with severe implications for symptom management and quality of life. People with Parkinson's disease should be able to access and afford the medicines they need to manage their condition.

摘要

背景

在撒哈拉以南非洲,帕金森病药物的可及性受到限制,这可能对帕金森病患者及其家庭的健康、社会和经济产生负面影响。然而,关于药物可及性差对个人的影响,文献中存在明显的差距。

目的

本研究旨在从帕金森病患者、照护者和神经科医生的角度了解肯尼亚帕金森病药物的可及性。

方法

对 55 名帕金森病患者、23 名照护者和 8 名神经科医生进行了深入的定性访谈,以了解他们在获得帕金森病药物方面所面临的挑战,以及药物供应不足和负担能力差对健康、社会和经济的影响。

结果

肯尼亚的帕金森病药物基本上无法获得且负担不起。帕金森病患者、照护者和神经科医生表示,在没有医疗保险覆盖的情况下,长期治疗带来了经济负担。此外,获取药物的障碍严重影响了症状控制、社会关系和生活质量。

结论

肯尼亚的帕金森病药物可及性有限,对症状管理和生活质量有严重影响。帕金森病患者应该能够获得和负担得起他们所需的药物来管理他们的病情。