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肯尼亚帕金森病药物的可及性:定性探索。

Access to Medicines for Parkinson's Disease in Kenya: A Qualitative Exploration.

机构信息

Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK.

Aga Khan University Hospital, Nairobi, Kenya.

出版信息

Mov Disord Clin Pract. 2024 Nov;11(11):1373-1378. doi: 10.1002/mdc3.14192. Epub 2024 Aug 21.

Abstract

BACKGROUND

The accessibility of Parkinson's disease medicines is limited across sub-Saharan Africa, which can have negative health, social and financial consequences for people with Parkinson's disease and their families. However, there is a stark gap in the literature regarding the impact of poor access to medicines on individuals.

OBJECTIVES

The study objective was to understand the accessibility of Parkinson's disease medicines in Kenya from the perspective of people with Parkinson's disease, their caregivers and neurologists.

METHODS

In-depth qualitative interviews were conducted with 55 people with Parkinson's disease, 23 caregivers and 8 neurologists to understand their experience regarding challenges with accessing Parkinson's disease medicines and the health, social and financial impact of poor availability and affordability.

RESULTS

Medicines for Parkinson's disease were deemed to be largely unavailable and unaffordable across Kenya. People with Parkinson's disease, caregivers and neurologists expressed the financial burden caused by long-term treatment in the absence of health insurance coverage. Further, barriers accessing medicines negatively impacted symptom control, social relations, and quality of life.

CONCLUSIONS

Access to Parkinson's disease medicines in Kenya is limited, with severe implications for symptom management and quality of life. People with Parkinson's disease should be able to access and afford the medicines they need to manage their condition.

摘要

背景

在撒哈拉以南非洲,帕金森病药物的可及性受到限制,这可能对帕金森病患者及其家庭的健康、社会和经济产生负面影响。然而,关于药物可及性差对个人的影响,文献中存在明显的差距。

目的

本研究旨在从帕金森病患者、照护者和神经科医生的角度了解肯尼亚帕金森病药物的可及性。

方法

对 55 名帕金森病患者、23 名照护者和 8 名神经科医生进行了深入的定性访谈,以了解他们在获得帕金森病药物方面所面临的挑战,以及药物供应不足和负担能力差对健康、社会和经济的影响。

结果

肯尼亚的帕金森病药物基本上无法获得且负担不起。帕金森病患者、照护者和神经科医生表示,在没有医疗保险覆盖的情况下,长期治疗带来了经济负担。此外,获取药物的障碍严重影响了症状控制、社会关系和生活质量。

结论

肯尼亚的帕金森病药物可及性有限,对症状管理和生活质量有严重影响。帕金森病患者应该能够获得和负担得起他们所需的药物来管理他们的病情。

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