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解决全球帕金森病差异的六个行动步骤:世界卫生组织的优先事项。

Six Action Steps to Address Global Disparities in Parkinson Disease: A World Health Organization Priority.

机构信息

Brain Health Unit, Department of Mental Health and Substance Use, World Health Organization, Geneva, Switzerland.

Department of Neurology, Norman Fixel Institute for Neurological Diseases, University of Florida, Gainesville.

出版信息

JAMA Neurol. 2022 Sep 1;79(9):929-936. doi: 10.1001/jamaneurol.2022.1783.

Abstract

IMPORTANCE

The Global Burden of Disease study conducted between 1990 and 2016, based on a global study of 195 countries and territories, identified Parkinson disease (PD) as the fastest growing neurological disorder when measured using death and disability. Most people affected by PD live in low- and middle-income countries (LMICs) and experience large inequalities in access to neurological care and essential medicines. This Special Communication describes 6 actions steps that are urgently needed to address global disparities in PD.

OBSERVATIONS

The adoption by the 73rd World Health Assembly (WHA) of resolution 73.10 to develop an intersectoral global action plan on epilepsy and other neurological disorders in consultation with member states was the stimulus to coordinate efforts and leverage momentum to advance the agenda of neurological conditions, such as PD. In April 2021, the Brain Health Unit at the World Health Organization convened a multidisciplinary, sex-balanced, international consultation workshop, which identified 6 workable avenues for action within the domains of disease burden; advocacy and awareness; prevention and risk reduction; diagnosis, treatment, and care; caregiver support; and research.

CONCLUSIONS AND RELEVANCE

The dramatic increase of PD cases in many world regions and the potential costs of PD-associated treatment will need to be addressed to prevent possible health service strain. Across the board, governments, multilateral agencies, donors, public health organizations, and health care professionals constitute potential stakeholders who are urged to make this a priority.

摘要

重要性

1990 年至 2016 年进行的全球疾病负担研究基于对 195 个国家和地区的全球研究,发现帕金森病(PD)是增长最快的神经退行性疾病,用死亡和残疾来衡量。大多数受 PD 影响的人生活在低收入和中等收入国家(LMICs),在获得神经护理和基本药物方面存在巨大的不平等。本特别通讯描述了 6 项急需采取的行动步骤,以解决 PD 方面的全球差异。

意见

第 73 届世界卫生大会(WHA)通过第 73.10 号决议,与会员国协商制定癫痫和其他神经障碍部门间全球行动计划,这是协调努力和利用势头推进神经状况议程的动力,如 PD。2021 年 4 月,世界卫生组织大脑健康股召集了一次多学科、性别平衡、国际协商研讨会,确定了在疾病负担、宣传和意识、预防和减少风险、诊断、治疗和护理、护理人员支持以及研究等领域的 6 个可行行动途径。

结论和相关性

许多世界区域 PD 病例的急剧增加以及与 PD 相关的治疗的潜在成本将需要解决,以防止可能的卫生服务紧张。各级政府、多边机构、捐助者、公共卫生组织和医疗保健专业人员构成了潜在的利益相关者,他们被敦促将此作为优先事项。

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