Pediatric Health Research Center, Tabriz University of Medical Sciences, Tabriz, Iran.
Department of Occupational Therapy, Faculty of Rehabilitation Sciences, Tabriz University of Medical Sciences, Tabriz, Iran.
Child Care Health Dev. 2024 Sep;50(5):e13321. doi: 10.1111/cch.13321.
Attitudes toward childhood disability have historically focused on biomedical efforts on 'fixing'. The introduction of WHO's ICF framework for health and Canadian researchers' 'F-words' (functioning, fitness, fun, friends, family and future) have significantly changed the field. To explore whether the F-words ideas influenced parents' perspectives on their child's abilities and rehabilitation goals, this qualitative pilot study introduced the F-words to Iranian parents with a child with a developmental disability.
This study was conducted in Tabriz, Iran, in 2023, using Iranian educational F-words materials built on ideas available on the CanChild F-words Knowledge Hub. Data were collected through semistructured interviews with five mothers of children <5 years old with a developmental disability before and after attending an 'F-words Awareness Session' and analysed using thematic analysis.
In the preinterviews, six themes (and 20 subthemes) were identified: (i) routines (5); (ii) challenges (4); (iii) parental concerns (3); (iv) child's needs and priorities (3); (v) the role of parents in satisfying needs and challenges (2); and (vi) expectations of rehabilitation (3). In the postinterview, the same six themes and four additional subthemes emerged.
Findings from the pilot study showed that the intervention had an impact on the attitudes and behaviours of participants. Specifically, teaching about the F-words reduced parents' emphasis on the concept of 'normality'. Families' positive response to the 'F-words Awareness Session' indicates their openness to incorporating this approach into their daily lives. These findings highlight the potential benefits of utilizing the F-words in rehabilitation in Iran. Studies like these can serve as a foundation for developing effective strategies for integrating the F-words into existing rehabilitation practices in Iran.
对儿童残疾的态度历来侧重于生物医学方面的“修复”努力。世界卫生组织的国际功能、残疾和健康分类（ICF）框架和加拿大研究人员的“F-词”（功能、体能、乐趣、朋友、家庭和未来）的引入极大地改变了这一领域。为了探讨“F-词”的理念是否影响了父母对孩子能力和康复目标的看法，本研究采用定性试点研究方法，向伊朗有发育障碍儿童的家长介绍了“F-词”。
本研究于 2023 年在伊朗大不里士进行，采用了基于 CanChild“F-词”知识中心提供的理念而构建的伊朗教育“F-词”材料。通过对 5 名 5 岁以下发育障碍儿童的母亲进行半结构化访谈，在参加“F-词意识研讨会”前后收集数据，并使用主题分析进行分析。
在访谈前，确定了六个主题（20 个子主题）：（i）日常生活（5）；（ii）挑战（4）；（iii）父母关注（3）；（iv）孩子的需求和优先事项（3）；（v）父母在满足需求和挑战中的作用（2）；（vi）康复期望（3）。在访谈后，出现了相同的六个主题和四个附加子主题。
试点研究的结果表明，干预措施对参与者的态度和行为产生了影响。具体来说，教授“F-词”减少了父母对“正常”概念的重视。家庭对“F-词意识研讨会”的积极反应表明他们愿意将这种方法融入日常生活。这些发现突显了在伊朗康复中利用“F-词”的潜在益处。此类研究可以为制定将“F-词”纳入伊朗现有康复实践的有效策略提供基础。
