Department of Sustainability and Planning, Aalborg University, Denmark.
Research Unit of Health Sciences and Technology, University of Oulu, Finland.
Stud Health Technol Inform. 2024 Aug 22;316:120-124. doi: 10.3233/SHTI240359.
The quality of the digital healthcare systems relies on citizens' willingness to share their digital health data. This makes citizens' use, perceptions, and attitudes towards digital healthcare systems pivotal. The study presented here examines Nordic citizens' willingness to share digital health data with healthcare providers and for research purposes. A cross-sectional study design was applied to obtain answers from citizens in Denmark, Finland, Iceland, Norway, and Sweden. The results are based on answers from 5078 citizens across the five countries. Results based on descriptive statistics indicate that the majority of Nordic citizens are willing to share health data that has clinical relevance with healthcare providers and for research purposes. The odds ratio analysis reveals that citizens' odds of sharing health data decreases with age and increases with the level of education. Conclusively, this study shows that most Nordic citizens are willing to share their health data, influenced by age and level of education. Awareness of and efforts to support citizens who are unable or unwilling to actively use and engage with the digital healthcare system is recommended.
数字医疗系统的质量取决于公民愿意分享其数字健康数据的意愿。这使得公民对数字医疗系统的使用、看法和态度至关重要。本研究考察了北欧公民在医疗保健提供者和研究目的方面愿意共享数字健康数据的意愿。采用横断面研究设计从丹麦、芬兰、冰岛、挪威和瑞典的公民那里获得答案。结果基于对五个国家的 5078 名公民的回答。基于描述性统计的结果表明,大多数北欧公民愿意与医疗保健提供者分享具有临床相关性的健康数据,并用于研究目的。优势比分析表明,公民分享健康数据的几率随着年龄的增长而降低,随着教育水平的提高而增加。综上所述,本研究表明,大多数北欧公民愿意分享他们的健康数据,这受到年龄和教育水平的影响。建议提高和支持那些无法或不愿意积极使用和参与数字医疗系统的公民的意识。