Crooks Jodie, Warren Rachel, Hudson Briony
Marie Curie, Research and Policy, London, UK
Marie Curie, Research and Policy, London, UK.
BMJ Support Palliat Care. 2024 Dec 19;14(e3):e2944-e2949. doi: 10.1136/spcare-2024-005074.
Evidence suggests that 61% of adults who were bereaved in the past 5 years had difficulties with at least one practical or administrative task following bereavement. We aimed to explore individual's experiences of interacting with private sector businesses following a bereavement.
Qualitative secondary analysis of data collected via an online survey within the UK Commission on Bereavement. Data from 1133 survey respondents was extracted verbatim, and thematic analysis was carried out. Participants were adults who had experienced a bereavement within the past 5 years and lived in the UK. They were eligible to take part in the survey.
Three core themes were developed: (1) needs of bereaved people outside of 'business as usual', (2) admin burden while grieving and (3) the impact and experience of organisational failures. The results of this secondary analysis outline that bereaved individuals often struggle with several points of interaction with private businesses, including facing resistance when making initial contact, insensitive or non-empathetic interactions, facing unrealistic timelines for administrative tasks that are not then returned by the business, and difficulty understanding and completing paperwork. Participants emphasised the difficulty in navigating this while in the initial period following a bereavement.
People experiencing a bereavement experience a high degree of mental load and emotional burden linked with interacting with private businesses following a bereavement. Given that this forms only one element of a person's whole bereavement experience, it is important that changes to policy and practice are made to allow a simple, positive experience for bereaved customers.
有证据表明,在过去5年中失去亲人的成年人中,61%在丧亲后至少在一项实际事务或行政任务上存在困难。我们旨在探讨个人在丧亲后与私营企业互动的经历。
对英国丧亲问题委员会通过在线调查收集的数据进行定性二次分析。逐字提取了1133名调查受访者的数据,并进行了主题分析。参与者为过去5年内经历过丧亲且居住在英国的成年人。他们有资格参与该调查。
形成了三个核心主题:(1)“正常业务”之外丧亲者的需求,(2)悲伤时的行政负担,以及(3)组织失误的影响和经历。本次二次分析的结果表明,丧亲者在与私营企业的几次互动中经常遇到困难,包括初次接触时面临阻力、互动不敏感或缺乏同理心、面临企业未返还的行政任务不切实际的期限,以及难以理解和完成文书工作。参与者强调在丧亲后的初期应对这些困难很不容易。
经历丧亲之痛的人在丧亲后与私营企业互动时会承受高度的心理负担和情感压力。鉴于这只是一个人整个丧亲经历的一个方面,重要的是要对政策和做法进行调整,以便为丧亲的客户提供简单、积极的体验。