Barakou Ioulia, Hackett Katie L, Abonie Ulric S, Hettinga Florentina J, Finch Tracy
Department of Nursing, Midwifery & Health, Northumbria University, Newcastle upon Tyne, UK.
Department of Sport Exercise and Rehabilitation, Northumbria University, Newcastle upon Tyne, UK.
Disabil Rehabil. 2025 May;47(9):2327-2337. doi: 10.1080/09638288.2024.2393798. Epub 2024 Aug 27.
To explore fatigue and physical activity behavior experiences and management, with an emphasis on activity pacing among adults with chronic conditions.
Semi-structured interviews were conducted with 15 adults with chronic conditions and the symptoms of chronic fatigue who had either received or not received fatigue management advice. Interviews were audio-recorded and transcribed verbatim, then analyzed using reflexive thematic analysis.
Participants reported barriers to fatigue management such as overactivity, mental health issues, and workplace challenges. Additionally, they highlighted rest, restful activities, and supportive social environment as facilitators of effective fatigue management, along with the importance of nutrition and physical activity. In some cases, there were conflicting experiences with social environment and physical activity. Activity pacing was identified as a promising solution and participants recommended several strategies for future consideration.
Participants identified fatigue as a significant denominator in daily living and recognized the importance of activity pacing in fatigue management. Through reflective processes, they uncovered crucial factors for effective fatigue management, highlighting a multidimensional, interdisciplinary, and tailored approach to activity pacing as a promising solution. Further research should explore clinicians' perspectives of a multidimensional fatigue management approach to further support optimal intervention design.
探讨慢性疾病成年人的疲劳及身体活动行为体验与管理，重点关注活动节奏。
对15名患有慢性疾病且有慢性疲劳症状的成年人进行了半结构化访谈，这些人有的接受过疲劳管理建议，有的则没有。访谈进行了录音并逐字转录，然后采用反思性主题分析法进行分析。
参与者报告了疲劳管理的障碍，如活动过度、心理健康问题和工作场所挑战。此外，他们强调休息、轻松的活动和支持性的社会环境是有效疲劳管理的促进因素，以及营养和身体活动的重要性。在某些情况下，社会环境和身体活动存在相互矛盾的体验。活动节奏被认为是一个有前景的解决方案，参与者推荐了几种策略以供未来考虑。
参与者将疲劳视为日常生活中的一个重要因素，并认识到活动节奏在疲劳管理中的重要性。通过反思过程，他们发现了有效疲劳管理的关键因素，强调了一种多维、跨学科且量身定制的活动节奏方法是一个有前景的解决方案。进一步的研究应探讨临床医生对多维疲劳管理方法的看法，以进一步支持优化干预设计。
