Leach Helen, Eccles Abi, Chew-Graham Carolyn A, Atherton Helen
Unit of Academic Primary Care, University of Warwick, Coventry, UK
Unit of Academic Primary Care, University of Warwick, Coventry, UK.
BJGP Open. 2025 Apr 24;9(1). doi: 10.3399/BJGPO.2024.0079. Print 2025 Apr.
Remote and digital consulting in primary care has rapidly expanded since March 2020. It is important to understand patient experiences, particularly for those living with complex long-term conditions, to identify how care can best be delivered, including within the remote space.
To explore the experiences of people living with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and fibromyalgia when consulting remotely in primary care.
DESIGN & SETTING: Semi-structured interviews with patients living with CFS/ME and fibromyalgia in general practice in England.
Semi-structured interviews were carried out with 13 participants. The interviews were transcribed and analysed thematically according to a Foucauldian theoretical framework.
All participants highlighted needing to feel believed by clinicians. Many reported difficulties with telephone and online consulting owing to the lack of physical communication. Positive outcomes were reported when there was a good relationship with a clinician. Continuity in care and recognising the complexity of these conditions were also considered important.
This study allowed people living with CFS/ME and fibromyalgia to describe their experiences when consulting remotely. Participants highlighted needing to feel listened to and felt they benefited from an ongoing relationship with a clinician although this was difficult to achieve when consulting remotely. Some advantages of remote consulting were reported, particularly when symptoms were troublesome. Flexible access systems, with a range of consultation modalities or preferred clinician(s) availability, could improve healthcare encounters, particularly given the increased use of remote consulting in primary care.
自2020年3月以来，初级保健中的远程和数字咨询迅速扩展。了解患者的体验非常重要，尤其是对于那些患有复杂长期病症的患者，以便确定如何以最佳方式提供护理，包括在远程环境中。
探讨慢性疲劳综合征/肌痛性脑脊髓炎（CFS/ME）和纤维肌痛患者在初级保健中进行远程咨询时的体验。
对英格兰全科医疗中患有CFS/ME和纤维肌痛的患者进行半结构化访谈。
对13名参与者进行了半结构化访谈。访谈内容根据福柯理论框架进行转录和主题分析。
所有参与者都强调需要让临床医生相信他们。许多人报告说，由于缺乏身体交流，电话和在线咨询存在困难。当与临床医生建立良好关系时，会报告积极的结果。护理的连续性以及认识到这些病症的复杂性也被认为很重要。
这项研究使患有CFS/ME和纤维肌痛的人能够描述他们在远程咨询时的经历。参与者强调需要被倾听，并觉得他们从与临床医生的持续关系中受益，尽管在远程咨询时很难做到这一点。报告了远程咨询的一些优点，特别是当症状令人困扰时。灵活的预约系统，提供一系列咨询方式或首选临床医生的可用时间，可能会改善医疗服务体验，特别是考虑到初级保健中远程咨询的使用增加。
