Del-Carpio-Toia Agueda-Muñoz, Mondragón-Barrios Liliana, Duro Eduardo Alfredo, Castro Laura Rueda, Sorokin Patricia
Universidad Católica de Santa María, Vicerrectorado de Investigación, Escuela de Postgrado, Escuela de Medicina Humana, Arequipa, Perú.
Instituto de Ética Clínica Francisco Vallés, Universidad Europea, Madrid, España.
Rev Cuerpo Med Hosp Nac Almanzor Aguinaga Asenjo. 2023 Apr-Jun;16(2). Epub 2023 Sep 19.
The protection of personal data in health systems requires special measures and procedures to ensure that the privacy of the information is not violated. Advances in digital technology and access to real-time transmission of personal, family, clinical, and laboratory data of patients and/or study subjects may compromise the protection of this information. The privacy of personal data in health in times of pandemic has meant a greater challenge, that is why this unique contribution is presented, whose objective is to identify the ethical and regulatory safeguards in terms of data protection to guarantee full respect for the privacy rights of people and the confidentiality of their data, under the context of health care, especially in conditions of health crisis, such as the one experienced during the SARS-CoV-2 pandemic. It also proposes a legislative harmonization in Latin America, on privacy and protection of personal data.
卫生系统中个人数据的保护需要采取特殊措施和程序，以确保信息隐私不被侵犯。数字技术的进步以及患者和/或研究对象的个人、家庭、临床和实验室数据的实时传输可能会危及此类信息的保护。疫情期间卫生领域个人数据的隐私保护面临着更大挑战，正因如此，本文做出这一独特贡献，目的是在医疗保健背景下，特别是在健康危机状况下，如在严重急性呼吸综合征冠状病毒2（SARS-CoV-2）大流行期间所经历的情况，确定数据保护方面的伦理和监管保障措施，以确保充分尊重人们的隐私权及其数据的保密性。本文还提议在拉丁美洲就个人数据隐私和保护进行立法协调。
