Magakwe Tshubelela Sello Simon, Hansraj Rekha, Xulu-Kasaba Zamadonda Nokuthula
Discipline of Optometry, University of KwaZulu Natal, Durban, KwaZulu Natal 4001, South Africa.
Int J Environ Res Public Health. 2024 Jul 31;21(8):1009. doi: 10.3390/ijerph21081009.
Vision-related quality-of-life (QoL) measures offer a comprehensive evaluation of the impact of eye conditions and the effectiveness of treatment on important aspects of QoL. A substantial number of tools for assessing health-related quality of life (HR-QoL) in adults have been reviewed. However, despite the high prevalence of uncorrected refractive errors causing visual impairment (VI) in children, there is a notable lack of similar tools for this vulnerable population. This review aimed to systemically map evidence on the availability and use of vision-specific instruments for assessing HR-QoL in children and adolescents with VI. This review follows the Joanna Briggs Institute (JBI) guidelines (2020) and the framework by Arksey and O'Malley and Levac et al. (2010). We conducted systematic searches through databases PubMed, Science Direct, and Scopus and search platforms Web of Science and EBSCOhost to source reviews published in English from the date of their inception to December 2023. The findings are reported according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping reviews (PRISMA-ScR). We reviewed twenty tools, nine of which were developed for children in the United States and three of which were developed for children in developing countries; no tools specifically developed for children in Africa were found. In the reviewed papers, the tools were presented to children, parents, or proxies in an interview or questionnaire format. For most of the tools, reliability was assessed using internal consistency (n = 12) and test-retest reliability (n = 12). The most dominant measures of validity were construct (n = 16), content (n = 8), internal (n = 4), and criterion (n = 4). There appears to be a need for more tools developed for children in middle-low-income countries, especially for African children.
视力相关生活质量（QoL）测量方法全面评估了眼部疾病的影响以及治疗对生活质量重要方面的有效性。已有大量关于评估成人健康相关生活质量（HR-QoL）的工具被综述。然而，尽管未矫正屈光不正导致儿童视力损害（VI）的患病率很高，但针对这一弱势群体的类似工具却明显不足。本综述旨在系统梳理有关评估患有视力损害的儿童和青少年HR-QoL的视力特定工具的可用性和使用情况的证据。本综述遵循乔安娜·布里格斯研究所（JBI）指南（2020年）以及阿克西和奥马利以及莱瓦克等人（2010年）的框架。我们通过数据库PubMed、Science Direct和Scopus以及搜索平台Web of Science和EBSCOhost进行系统检索，以获取从创刊至2023年12月以英文发表的综述。研究结果根据系统评价和Meta分析扩展版的范围综述优先报告项目（PRISMA-ScR）进行报告。我们审查了20种工具，其中9种是为美国儿童开发的，3种是为发展中国家儿童开发的；未发现专门为非洲儿童开发的工具。在所审查的论文中，这些工具以访谈或问卷的形式呈现给儿童、父母或代理人。对于大多数工具，使用内部一致性（n = 12）和重测信度（n = 12）来评估信度。效度的最主要测量方法是结构效度（n = 16）、内容效度（n = 8）、内部效度（n = 4）和效标效度（n = 4）。似乎需要为中低收入国家的儿童，特别是非洲儿童开发更多工具。
