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“一颗潜在的定时炸弹”——智障人群中心血管疾病预防、诊断和治疗的障碍。

'A potentially ticking time bomb' - barriers for prevention, diagnosis, and treatment of cardiovascular disease in people with intellectual disabilities.

机构信息

Studio Apertura, NTNU Social Research, Norwegian University of Science and Technology, Trondheim, Norway.

Centre for Obesity Research and Innovation, Department of Surgery, St. Olavs Hospital, Trondheim, Norway.

出版信息

J Appl Res Intellect Disabil. 2024 Nov;37(6):e13279. doi: 10.1111/jar.13279.

Abstract

BACKGROUND

Research suggests that people with intellectual disabilities have a higher risk for cardiovascular disease than the general population. The aim of this study was to identify barriers for the prevention, diagnosis, and treatment of cardiovascular disease for people with intellectual disabilities.

METHOD

We conducted individual interviews with relatives and general practitioners and focus group interviews with staff working at an assisted home facility, a cardiac ward, an obesity clinic and two rehabilitation centres (n = 33) in Norway. Inductive approach and thematic analysis were used to analyse the data.

RESULTS

We identified barriers on an individual and a structural level. The underlying reason for these barriers is that health problems, such as cardiovascular disease, are regularly overlooked as the condition of intellectual disability overshadows other possible diagnoses.

CONCLUSION

This focus on intellectual disability rather than other explanations leads to shortcomings in the prevention, diagnoses, and treatment of cardiovascular disease in this group.

摘要

背景

研究表明,智障人士患心血管疾病的风险高于普通人群。本研究旨在确定智障人士心血管疾病预防、诊断和治疗的障碍。

方法

我们在挪威对亲属和全科医生进行了个人访谈,对辅助生活设施、心脏病病房、肥胖症诊所和两个康复中心的工作人员进行了焦点小组访谈(n=33)。采用归纳法和主题分析来分析数据。

结果

我们在个人和结构层面上发现了障碍。这些障碍的根本原因是,由于智力残疾的状况掩盖了其他可能的诊断,心血管疾病等健康问题经常被忽视。

结论

这种对智力残疾的关注而不是其他解释,导致了这一人群心血管疾病的预防、诊断和治疗存在不足。

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