Department of Care Science, Faculty of Health and Society, Malmo University, Malmo, Sweden
Skanes universitetssjukhus Malmo, Malmo, Sweden.
BMJ Open. 2024 Aug 28;14(8):e084240. doi: 10.1136/bmjopen-2024-084240.
At times of parental cancer, children's health and well-being are at risk, which is why interventions to support these children have been developed. When developing such interventions, engagement of the population under study in research is endorsed to enhance relevance of research questions and to enhance uptake and dissemination of the findings. Since no previous review has mapped the ways children participate in the development, use and evaluation of these support interventions, the focus of the upcoming scoping review is to identify gaps in the literature for guidance of future research.
The scoping review is guided by the methodological framework developed by Arksey and O'Malley. A preliminary search strategy was performed in PubMed in November 2020, refined in March 2021 and applied in PubMed, PsycINFO and CINAHL. Additional searches were performed in Google Scholar and SwePub, and reference lists were hand searched. Refined searches will be conducted in February 2024. The multidisciplinary research team will independently screen titles, abstracts and full-text articles for relevance. Then, relevant studies will be critically evaluated using the Joanna Briggs Critical Appraisal Skills Tools. Data will be extracted using an extraction form and analysed deductively. A descriptive summary of study characteristics and the research process will be presented, including a flow chart. The reporting of the study will be guided by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews Checklist.
Being a secondary analysis, ethical approval is not needed. Still, relevant studies will be reviewed for ethical approval as a criterion for inclusion. The findings will be used to inform future studies and will be published in a scientific journal as well as presented at conferences and organisations for children's rights.
在父母患癌时，儿童的健康和福祉受到威胁，因此开发了支持这些儿童的干预措施。在开发这些干预措施时，支持研究人群参与研究可以增强研究问题的相关性，并提高研究结果的接受度和传播度。由于以前没有综述描述儿童参与这些支持干预措施的制定、使用和评估的方式，因此即将进行的范围综述的重点是确定文献中的空白，为未来的研究提供指导。
该范围综述以 Arksey 和 O'Malley 制定的方法框架为指导。2020 年 11 月在 PubMed 中进行了初步搜索策略，2021 年 3 月进行了精炼，并在 PubMed、PsycINFO 和 CINAHL 中应用。在 Google Scholar 和 SwePub 中进行了额外的搜索，并手动搜索了参考文献列表。2024 年 2 月将进行精炼搜索。多学科研究团队将独立筛选标题、摘要和全文文章的相关性。然后，使用 Joanna Briggs 批判性评估技能工具对相关研究进行批判性评估。使用提取表格提取数据，并进行演绎分析。将呈现研究特征和研究过程的描述性摘要，包括流程图。研究报告将遵循系统评价和荟萃分析扩展的首选报告项目范围综述清单进行指导。
由于这是二次分析，因此不需要伦理批准。然而，作为纳入标准，将对相关研究进行伦理审查。研究结果将用于为未来的研究提供信息，并将在科学期刊上发表，并在会议和儿童权利组织上展示。
