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心理社会干预如何满足癌症患儿父母的需求:综述与批判性评价。

How psychosocial interventions meet the needs of children of parents with cancer: A review and critical evaluation.

机构信息

School of Psychological Science, The University of Western Australia (M304), Crawley, WA, Australia.

Cancer Council SA, Eastwood, SA, Australia.

出版信息

Eur J Cancer Care (Engl). 2020 Sep;29(5):e13237. doi: 10.1111/ecc.13237. Epub 2020 May 13.

Abstract

INTRODUCTION

The aim of this study was to evaluate how psychosocial interventions for children aged 0-18 years of a parent with cancer meet their needs, using key needs as consumer-based "standards."

METHODS

A systematic literature review was conducted. Fifteen interventions met inclusion criteria and were assessed against six key needs identified by Ellis et al. (Eur. J. Cancer Care, 26, 2017, e12432): (1) provide children with age-appropriate information about their parent's cancer; (2) support family communication; (3) normalise and reduce feelings of isolation through peer support; (4) provide a space to share feelings; (5) individually tailor support; and (6), where appropriate, provide specialised bereavement support.

RESULTS

No intervention clearly met all six needs, but each partially addressed at least two needs, and three clearly met at least four needs. The most commonly addressed need was supporting family communication, and the least addressed need was bereavement support.

CONCLUSION

Interventions identified in this review addressed some needs of children impacted by a parent's cancer. This research provides a framework to inform the creation, modification and implementation of psychosocial support interventions that best meet the needs of these children, thereby mobilising consumer-focused service provision.

摘要

简介

本研究旨在评估针对父母患有癌症的 0-18 岁儿童的心理社会干预措施如何满足他们的需求,使用关键需求作为基于消费者的“标准”。

方法

进行了系统的文献回顾。符合纳入标准的 15 项干预措施,并根据 Ellis 等人(Eur. J. Cancer Care, 26, 2017, e12432)确定的六项关键需求进行了评估:(1)为儿童提供与其父母癌症相关的适龄信息;(2)支持家庭沟通;(3)通过同伴支持使感受正常化并减少孤立感;(4)提供一个分享感受的空间;(5)个性化定制支持;(6)在适当的情况下,提供专门的丧亲支持。

结果

没有一项干预措施完全满足所有六项需求,但每项干预措施至少部分满足了两项需求,有三项干预措施明确满足了至少四项需求。最常涉及的需求是支持家庭沟通,而最不涉及的需求是丧亲支持。

结论

本研究中确定的干预措施满足了一些受父母癌症影响的儿童的需求。这项研究为创建、修改和实施最能满足这些儿童需求的心理社会支持干预措施提供了框架,从而调动了以消费者为中心的服务提供。

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