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本文引用的文献

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ESMO Expert Consensus Statements on Cancer Survivorship: promoting high-quality survivorship care and research in Europe.ESMO 专家共识声明:关注癌症幸存者——在欧洲推动高质量的生存关怀和研究
Ann Oncol. 2022 Nov;33(11):1119-1133. doi: 10.1016/j.annonc.2022.07.1941. Epub 2022 Aug 10.
2
Understanding the quality of life (QOL) issues in survivors of cancer: towards the development of an EORTC QOL cancer survivorship questionnaire.了解癌症幸存者的生活质量(QOL)问题:制定 EORTC QOL 癌症生存者调查问卷。
Health Qual Life Outcomes. 2018 Jun 4;16(1):114. doi: 10.1186/s12955-018-0920-0.
3
Cancer survivorship research: state of knowledge, challenges and opportunities.癌症幸存者研究:知识现状、挑战与机遇
Acta Oncol. 2007;46(4):417-32. doi: 10.1080/02841860701367878.
4
Cancer survivorship: a new challenge in comprehensive cancer control.癌症幸存者关怀:综合癌症控制中的一项新挑战。
Cancer Causes Control. 2005 Oct;16 Suppl 1:51-9. doi: 10.1007/s10552-005-0452-x.

政策简报 - 在欧洲癌症控制项目(EBCP)中,癌症幸存者是否是癌症控制领域被忽视的一环?

Policy Brief - Survivorship is cancer survivorship the poor cousin of cancer control within the EBCP?

作者信息

Mbengi Régine Kiasuwa, Schittecatte Gabrielle, Theys Sofie

机构信息

Belgian Cancer Centre, Sciensano, Brussels, Belgium.

出版信息

Arch Public Health. 2024 Aug 29;82(Suppl 1):143. doi: 10.1186/s13690-024-01371-9.

DOI:10.1186/s13690-024-01371-9
PMID:39210483
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11360318/
Abstract

BACKGROUND

There is an increasing number of cancer survivors, including children, adolescents, young adults, individuals of working age, and the elderly, within the Belgian and European population. Yet, survivorship care and rehabilitation are often treated as an afterthought in care organisation. This not only directly affects the quality of life of survivors and carers, but also puts the sustainability of the healthcare and social security systems at risk.

METHODS

We analysed the ongoing Europe Beating Cancer Plan (EBCP) to identify the actions supporting survivorship (care) developments, then compared their weight in the EBCP to the other domains of cancer control. Following this analysis, and comparison with related ongoing projects, and current infrastructure in Belgium, several unmet needs were identified.

CONCLUSION

To better address these unmet needs, we recommend that Belgium incorporates survivorship care and long-term follow-up in clinical guidelines and care pathways, and considers including indicators related to cancer survivorship in the planning and design of quality insurance schemes, including certification of comprehensive cancer centres. Furthermore, we suggest further investment and support for research and knowledge exchange in the field of survivorship.

摘要

背景

在比利时和欧洲人口中,癌症幸存者的数量不断增加,其中包括儿童、青少年、青年、工作年龄段的人群以及老年人。然而,在医疗组织中,生存护理和康复往往被视为事后才考虑的事情。这不仅直接影响幸存者和护理人员的生活质量,还使医疗保健和社会保障系统的可持续性面临风险。

方法

我们分析了正在实施的《欧洲抗癌计划》(EBCP),以确定支持生存(护理)发展的行动,然后将其在EBCP中的权重与癌症控制的其他领域进行比较。经过这一分析,并与相关的正在进行的项目以及比利时当前的基础设施进行比较,确定了一些未满足的需求。

结论

为了更好地满足这些未满足的需求,我们建议比利时将生存护理和长期随访纳入临床指南和护理路径,并考虑在质量保险计划的规划和设计中纳入与癌症生存相关的指标,包括综合癌症中心的认证。此外,我们建议进一步投资并支持生存领域的研究和知识交流。