Baruah Rosaleen
Intensive Care Unit, Western General Hospital, Edinburgh, UK.
J Intensive Care Soc. 2024 Apr 22;25(3):319-325. doi: 10.1177/17511437241249847. eCollection 2024 Aug.
Autism is a lifelong neurodevelopmental condition. Autistic people face challenges as patients in the intensive care unit (ICU) and as providers of healthcare in the ICU. This article describes the experience of autistic people using a neurodiversity-affirming approach. Using the 'Autistic SPACE' framework, the needs of autistic people are described in terms of sensory needs, need for predictability, need for autistic acceptance, communication differences and how to approach them, and the benefits of a person-centred empathy-based approach to autistic people. The approach to autistic patients is described in terms of reasonable adjustments within a framework of positive risk taking. For supervisors and managers of autistic healthcare professionals, autism-friendly adjustments to training and working practice, with rationales, are suggested.
自闭症是一种终身的神经发育障碍。自闭症患者在重症监护病房（ICU）作为患者以及作为ICU医疗服务提供者时都面临挑战。本文描述了自闭症患者采用神经多样性肯定方法的经历。使用“自闭症空间”框架，从感官需求、可预测性需求、自闭症接纳需求、沟通差异以及如何应对这些差异，以及以患者为中心的同理心方法对自闭症患者的益处等方面描述了自闭症患者的需求。从积极冒险框架内的合理调整方面描述了对自闭症患者的治疗方法。对于自闭症医疗专业人员的主管和管理人员，建议对培训和工作实践进行有利于自闭症患者的调整，并给出了理由。
