Department of Psychiatry, Wroclaw Medical University, Wrocław, Poland.
Department and Clinic of Dermatology, Allergology and Venerology, Wrocław Medical University, Wrocław, Poland.
Front Public Health. 2024 Aug 21;12:1418867. doi: 10.3389/fpubh.2024.1418867. eCollection 2024.
Due to the need to increase social awareness about dementia and the needs of patients living with dementia in Poland, the (eng. ) campaign was created. The aim of the study was to evaluate its effectiveness.
To disseminate key campaign messages to the target audiences (people with dementia, carers, health and social care professionals [HSCP] and general public) a website, social and traditional media promotions, webinars and social activities were created. The campaign ran between September 2021 and April 2022. Mixed methods (online survey, reach estimates and interviews) were used to evaluate the campaign.
Almost 1,300 people visited the website during the campaign period. Of these, 55 carers and HSCP responded to the online survey. The most read section of the website was (carers [56% of 25] and HSCP [80% out of 30]). The website was mostly accessed by carers (68%) and HSCP (66.7%) through word-of-mouth recommendations. 80% carers and 90% HSCP found the website very or extremely helpful. Over 90% of carers and HSCP expressed an intention to revisit the website. Based on 31 interviews, campaign effects, change mechanisms and limitations were identified. Campaign events elicited positive emotions among people with dementia, providing them with a feeling of belonging and engagement. Esteeming personal interactions over informational campaign materials, those with dementia felt acknowledged and empowered by the events. Carers also reported positive experiences and increased interest and knowledge, though they expressed disappointment with the lack of respite care, an issue beyond the campaign's scope. HSCP perceived the campaign events positively and identified significant gaps in the dementia care system.
Evaluation of the campaign revealed successes and limitations. While effectively incorporating anti-stigma campaign recommendations and enhancing social health for individuals with dementia, the campaign clearly showed the pressing need for systemic solutions. Despite positive perception of the campaign, there is a need for a better diagnostic and post-diagnostic support for people with dementia and their carers.
由于需要提高波兰公众对痴呆症的认识以及患者的需求，发起了这项（英文）运动。本研究旨在评估其效果。
为向目标受众（痴呆症患者、照顾者、卫生和社会保健专业人员[HSCP]以及公众）传播关键的运动信息，创建了一个网站、社会和传统媒体宣传、网络研讨会和社会活动。运动于 2021 年 9 月至 2022 年 4 月进行。采用混合方法（在线调查、覆盖估计和访谈）评估运动效果。
在运动期间，近 1300 人访问了该网站。其中，55 名照顾者和 HSCP 回应了在线调查。网站上阅读量最高的部分是（照顾者[56%的 25 名受访者]和 HSCP[80%的 30 名受访者]）。网站主要由照顾者（68%）和 HSCP（66.7%）通过口口相传访问。80%的照顾者和 90%的 HSCP 认为网站非常有帮助或极有帮助。超过 90%的照顾者和 HSCP 表示打算再次访问该网站。根据 31 次访谈，确定了运动效果、变化机制和局限性。运动活动在痴呆症患者中引起了积极的情绪，使他们感到归属感和参与感。与信息宣传材料相比，他们更看重个人互动，这些活动让他们感到被认可和赋权。照顾者也报告了积极的体验以及兴趣和知识的增加，但他们对缺乏喘息护理表示失望，这是运动范围之外的问题。HSCP 对运动活动给予了积极的评价，并发现痴呆症护理系统存在重大差距。
对该（英文）运动的评估揭示了成功和局限性。该运动有效结合了反污名化运动的建议，并提高了痴呆症患者的社会健康水平，但也清楚地表明，需要系统解决方案。尽管人们对运动的看法积极，但痴呆症患者及其照顾者仍需要更好的诊断和诊断后支持。
