German Foundation for the Chronically Ill, Berlin, Germany.
University of Applied Sciences and Arts, Faculty III - Media, Information and Design, Hanover, Germany.
Stud Health Technol Inform. 2024 Aug 30;317:305-313. doi: 10.3233/SHTI240872.
The integration of Patient-Reported Experience Measures (PREM) alongside traditional clinical outcomes is crucial for improving quality of care. Although PREMs are frequently measured in inpatient treatment settings, they are rarely employed in digitally supported care processes or longitudinal assessment of care pathways.
To gain an overview of PREMs used to cover patients' experiences with digitally supported care processes in heart failure (HF), a scoping review was conducted in Medline.
Out of 538 publications, 29 were identified that focus on PREMs in digitally supported care processes across 9 unspecific and 14 disease-specific groups, with 5 manuscripts focusing on HF. PREMs were mostly assessed using self-developed, study-specific questionnaires lacking standardization and validity. In total, 9 PREM dimensions and 25 sub-dimensions were identified. This included care delivery, privacy, physician-patient relationship, involvement, administration, information, knowledge, technology, and experiences in general.
The findings suggest that the relevance of different dimensions assessed depends largely on the type of care rather than the underlying chronic disease.
将患者报告的体验测量（PREM）与传统临床结果相结合，对于改善医疗质量至关重要。尽管 PREM 经常在住院治疗环境中进行测量，但它们很少用于数字支持的护理流程或护理路径的纵向评估。
为了全面了解用于涵盖心力衰竭（HF）患者对数字支持的护理流程的体验的 PREM，在 Medline 中进行了范围综述。
在 538 篇出版物中，确定了 29 篇重点关注数字支持的护理流程中的 PREM，涉及 9 个非特定组和 14 个疾病特定组，其中 5 篇手稿专注于 HF。PREM 主要使用自行开发的、缺乏标准化和有效性的研究特定问卷进行评估。总共确定了 9 个 PREM 维度和 25 个子维度。其中包括护理提供、隐私、医患关系、参与度、管理、信息、知识、技术以及一般体验。
研究结果表明，评估的不同维度的相关性在很大程度上取决于护理类型，而不是潜在的慢性疾病。
