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在照顾他人的同时照顾好自己:一项探索中风幸存者女性照料者心理和心血管健康行为的定性研究。

Caring for yourself while you care for someone else: a qualitative study exploring the mental and cardiovascular health behaviours of female carers of stroke survivors.

作者信息

Denham A M J, Haracz K, Simpson D, Bird M L, Mabotuwana N, Janssen H

机构信息

School of Health Sciences, University of Newcastle, Callaghan, Australia.

School of Health Sciences, University of Tasmania, Hobart, Australia.

出版信息

Disabil Rehabil. 2025 May;47(10):2628-2636. doi: 10.1080/09638288.2024.2399229. Epub 2024 Sep 5.

Abstract

PURPOSE

Female carers of stroke survivors may experience increased risk of developing chronic health issues, such as cardiovascular disease. This study aims to understand: (i) how female carers of stroke survivors manage their mental and cardiovascular health and (ii) the characteristics they would find helpful in an intervention to support their ability to manage their health and wellbeing.

MATERIALS AND METHODS

A qualitative descriptive design was used with data collected semi-structured interviews and analysed using inductive thematic analysis.

RESULTS

Eighteen female carers of stroke survivors participated in the study. Three key themes were identified: (i) struggling to prioritise own health and wellbeing; (ii) new roles and responsibilities impact on self-care; and (iii) peer-support improves mental health and well-being. Carers described preferences for group interventions to include peer support and have flexible delivery to allow easy access to information. One-to-one sessions with different health professionals may also be useful at times through the caregiving journey.

CONCLUSIONS

These findings suggest that current interventions do not address cardiovascular risk self-management for female carers and provide insight into characteristics of interventions that may increase acceptability and feasibility of interventions to support long-term cardiovascular and mental health-promoting behaviours.

摘要

目的

中风幸存者的女性照料者可能面临罹患慢性健康问题(如心血管疾病)风险的增加。本研究旨在了解:(i)中风幸存者的女性照料者如何管理其心理和心血管健康,以及(ii)她们认为在一项支持其管理自身健康和幸福能力的干预措施中哪些特征会有所帮助。

材料与方法

采用定性描述性设计,通过半结构化访谈收集数据,并使用归纳主题分析法进行分析。

结果

18名中风幸存者的女性照料者参与了该研究。确定了三个关键主题:(i)难以将自身健康和幸福置于优先地位;(ii)新角色和责任对自我护理产生影响;(iii)同伴支持可改善心理健康和幸福感。照料者描述了对包含同伴支持且提供灵活服务以便轻松获取信息的团体干预措施的偏好。在整个照料过程中,有时与不同的健康专业人员进行一对一的会面可能也会有所帮助。

结论

这些发现表明,当前的干预措施未涉及女性照料者的心血管风险自我管理,并为可能提高支持长期促进心血管和心理健康行为的干预措施的可接受性和可行性的干预特征提供了见解。

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