Marwi Abdulaziz, Bali Ibrahim A, Almurashi Abdulhalim, Alharbi Eman H, Alnkhli Ibtesam J, Moneer Alqerafi Nader
Preventive Medicine, Public Health Administration, Ministry of Health, Madinah, SAU.
Pediatric Endocrinology, King Salman Bin Abdulaziz Medical City, Madinah, SAU.
Cureus. 2024 Aug 8;16(8):e66427. doi: 10.7759/cureus.66427. eCollection 2024 Aug.
Caregivers and families play an essential role in managing and caring for type 1 diabetes mellitus (T1DM) pediatric patients. However, caregiving is usually associated with social and financial burdens. This study assesses the burden and underlying social and financial factors among Saudi caregivers of pediatric patients with T1DM.
A cross-sectional study was conducted among caregivers and families of T1DM pediatric patients attending the Diabetic Center at King Fahad Hospital (KFH) and the Diabetic Center at King Salman Bin Abdulaziz Medical City (KSAMC) in Al-Madinah City, Kingdom of Saudi Arabia (KSA) from January 2024 to June 2024. The data collection was done using the Zarit Burden Questionnaire and the Caregiver Care Cost Assessment Questionnaire.
The study surveyed 376 participants, primarily females (N = 285, 75.8%) and married (N = 317, 84.3%), with a majority aged between 18 and 47 years (N = 322, 85.6%). The burden experienced by families with T1DM pediatric patients was moderate, with a mean total burden level score of 27.8 ± 16.3. For those employed, most reported working as usual (N = 107, 81.1%), with most spending less than two hours on care weekly (N = 76, 57.6%). A significant association was found between the financial impact of caregiving on saving, spending, and general financial stress and social burden (p < 0.01).
The findings show a moderate burden faced by caretakers of T1DM pediatric patients, with a strong correlation between the financial impact of caregiving on saving, spending, and general financial stress and burden level. The findings also highlight the significant impact of caregiving on the financial stress and lifestyle changes that caregivers endure.
照顾者和家庭在管理和照顾1型糖尿病（T1DM）儿科患者方面发挥着至关重要的作用。然而，照顾通常伴随着社会和经济负担。本研究评估了沙特T1DM儿科患者照顾者的负担以及潜在的社会和经济因素。
2024年1月至2024年6月，在沙特阿拉伯王国麦地那市法赫德国王医院（KFH）糖尿病中心和萨勒曼·本·阿卜杜勒阿齐兹国王医疗城（KSAMC）糖尿病中心就诊的T1DM儿科患者的照顾者和家庭中进行了一项横断面研究。使用Zarit负担问卷和照顾者护理成本评估问卷进行数据收集。
该研究调查了376名参与者，主要为女性（N = 285，75.8%）且已婚（N = 317，84.3%），大多数年龄在18至47岁之间（N = 322，85.6%）。T1DM儿科患者家庭所经历的负担为中度，平均总负担水平评分为27.8±16.3。对于有工作的人，大多数报告照常工作（N = 107，81.1%），大多数人每周花费不到两小时进行护理（N = 76，57.6%）。发现照顾对储蓄、支出和一般财务压力的财务影响与社会负担之间存在显著关联（p < 0.01）。
研究结果表明，T1DM儿科患者的照顾者面临中度负担，照顾对储蓄、支出和一般财务压力的财务影响与负担水平之间存在很强的相关性。研究结果还突出了照顾对照顾者所承受的财务压力和生活方式变化的重大影响。
