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“人人都指责你”:物质使用障碍儿童家长的污名化与照料负担

"Everyone blames you": Stigma and caregiver burden among parents of children with substance use disorder.

作者信息

Kaynak Övgü, Whipple Christopher R, Burma Roshnee, Verdia Saanya, Sturges Nicole, Saylor Erica, Kensinger Weston S

机构信息

Department of Social Sciences and Psychology, School of Behavioral Sciences and Education, Penn State Harrisburg.

Center for Survey Research, Institute of State and Regional Affairs, Penn State Harrisburg.

出版信息

J Fam Psychol. 2024 Dec;38(8):1179-1188. doi: 10.1037/fam0001266. Epub 2024 Sep 9.

DOI:10.1037/fam0001266
PMID:39250280
Abstract

Recent increases in drug overdose deaths have created a significant public health crisis in the United States. Individuals diagnosed with substance use disorder (SUD) often rely on their social support network as they engage in treatment and recovery. While support from parents, in particular, can be vital in recovery, stress associated with supporting loved ones with SUD can have detrimental effects on health and well-being. Stigma toward parents and loved ones further complicates the support they can offer. The present study explores caregiver burden and stigma experienced by parents of children with SUD. The impact of these experiences on their ability to access support and resources, both for themselves and their children, is of particular interest. In-depth one-on-one interviews were conducted with 25 parents (92% mothers) of children (ages 17-32 years old) with SUD. Qualitative thematic analysis resulted in three themes: (1) caregiving and associated burden, (2) parent experiences with SUD stigma, and (3) impact of stigma on caregiver support. Experiences of burden and stigma were prevalent; parents reported stigma directed at them due to their child's diagnosis (associative stigma) as well as psychological distress they experienced witnessing their children experience stigma (vicarious stigma). Fear of judgment and shame led parents to avoid disclosing their child's SUD to others and impeded help-seeking behavior. When parents did seek formal help, resources were limited and insufficient. The findings underscore the need for increased understanding and acceptance from the community, emphasizing the potential role of education in reshaping perceptions. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

摘要

近期药物过量致死人数的增加在美国引发了一场重大的公共卫生危机。被诊断患有物质使用障碍(SUD)的个体在接受治疗和康复过程中往往依赖其社会支持网络。尤其是来自父母的支持在康复过程中可能至关重要,然而,支持患有SUD的亲人所带来的压力可能会对健康和幸福产生不利影响。对父母及亲人的污名化进一步使他们所能提供的支持变得复杂。本研究探讨了患有SUD的儿童的父母所经历的照料负担和污名化。这些经历对他们为自己和孩子获取支持及资源的能力的影响尤其令人关注。对25位患有SUD的儿童(年龄在17 - 32岁之间)的父母(92%为母亲)进行了深入的一对一访谈。定性主题分析得出了三个主题:(1)照料及相关负担,(2)父母对SUD污名化的经历,以及(3)污名化对照料者支持的影响。负担和污名化的经历很普遍;父母报告称,由于孩子的诊断而遭受针对他们的污名化(关联污名),以及目睹孩子遭受污名化时他们所经历的心理困扰(替代性污名)。对评判和羞耻的恐惧导致父母避免向他人透露孩子的SUD,并阻碍了他们寻求帮助的行为。当父母确实寻求正式帮助时,资源有限且不足。研究结果强调了社区需要增强理解和接纳,强调了教育在重塑观念方面的潜在作用。(PsycInfo数据库记录(c)2024美国心理学会,保留所有权利)

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