Universidade Federal de São Carlos/UFSCar, Departamento de Fisioterapia, Laboratório de Análise do Desenvolvimento Infantil (LADI), Rodovia Washington Luís, s/n, Monjolinho, 13565-905 São Carlos, SP, Brazil.
McMaster University, CanChild, 1280 Main St W, Hamilton, ON L8S 4L8, Canada.
An Acad Bras Cienc. 2024 Sep 9;96(suppl 1):e20230558. doi: 10.1590/0001-3765202420230558. eCollection 2024.
According to a biopsychosocial framework, personal and environmental factors might be mediators or facilitators/barriers, respectively, to functioning. However, it is not known how these factors can impact independence in household chores in children/adolescents with Down syndrome (DS). This study explored whether and how personal/environmental factors are associated with the independence level in household chores of children/adolescents with DS in Brazil. Caregivers of twenty-eight children/adolescents with DS were interviewed using the CHORES and a standardized questionnaire about personal (child's age and sex) and environmental (socioeconomic level and maternal schooling) factors. Multiple linear regression analysis identified if/how these factors are associated with level of independence. For CHORES self-care and CHORES total, sex was a significant variable explaining 21.8% and 15.8%, respectively, of the variation in the outcomes. For the outcome CHORES family care none of the variables was significant. Female sex was associated with a lower need for assistance. We conclude that only the personal factor assessed related to female sex in children with DS was associated with the independence level in household chores. This finding highlights the importance of health care providers and families to encourage the independence in chores regardless of sex and promote opportunities for both boys and girls.
根据生物心理社会框架，个人和环境因素可能分别作为功能的中介或促进/障碍因素。然而，尚不清楚这些因素如何影响唐氏综合征（DS）儿童/青少年的家务独立性。本研究探讨了巴西 DS 儿童/青少年的个人/环境因素是否以及如何与家务独立性水平相关。使用 CHORES 和一份关于个人（孩子的年龄和性别）和环境（社会经济水平和母亲教育程度）因素的标准化问卷，对 28 名 DS 儿童/青少年的照顾者进行了访谈。多元线性回归分析确定了这些因素如何与独立性水平相关。对于 CHORES 自我护理和 CHORES 总分，性别是一个显著的变量，分别解释了 21.8%和 15.8%的结果变异。对于 CHORES 家庭护理的结果，没有一个变量是显著的。女性性别与较低的辅助需求相关。我们得出结论，只有与 DS 儿童的个人因素评估相关的性别因素与家务独立性水平相关。这一发现强调了医疗保健提供者和家庭的重要性，他们应鼓励无论性别如何，都要独立完成家务，并为男孩和女孩提供机会。
